Keeping warm with CFS

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Hi everyone, I'm sure I'm not the only one who was freezing yesterday with the cold and wet day that we had. I reluctantly put the central heating on and sat in front of my halogen fire (which only warms my feet), plus I had a hot water bottle and sat with loads of layers of clothes on. Eventually I got so hot that I felt ill, like I had flu, and was only comfortable later in bed, feeling just right at last. It has made me really fear the winter as I can't seem to move around much when it's cold, and sitting around all day long makes me feel worse. I can understand Brits moving abroad for half the year to avoid our winter, but i can't do that! I am thinking of buying a freestanding electric fire that will warm up parts of the room that the radiator doesn't seem to, and also maybe a light box to brighten up the house when it's so dark outside, but I don't want anything too bright as that will hurt my eyes. Can anyone give me any tips on how you mange the cold and dull wintry days, and also any advice on how you get through our long winters?  Mary


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6 Replies

  • Posted

    Do you have central heating, if so, don't turn it off as the house cools down and you waste so much energy and money heating it back up again. I just turn my down a few degrees during the day and then it heats up real quick. 

    I like the fan heaters as they blow heat at you, warm the room up quick and then you turn them off. I am not a fan of electric radiators. If you go the electric route watch how much they cost to run or you may have a huge bill awaiting you.

    I wear a few layers to keep warm and if you get the right gear you will stay nice and cosy. A sleeping bag is another idea to keep you warm of pull the duvet over you whilst sat in the chair. 

    I can always tell when my CFS is bad because I get supper cold, best of luck 

  • Posted

    Hi, thanks for your reply. I got so cold yesterday and had a real CFS flare up as a result, Felt really achy and fluey, all from being cold! I had loads of layers on but couldn't get warm! I do have gas central heating and a very good boiler but one rad in the room isn't enough to keep me warm; it's controlled by a thermostat which is helpful. I'm thinking of an electric fire rather than an electric radiator. I thought fan heaters were expensive to run? I've ordered an electric heater throw so that might help! 

  • Posted

    In colder weather I have the heating set so the house is warmer when I get up then have something like porridge for breakfast followed by a warm shower or bath. This seems to warm me up a bit for a couple of hours. If I manage a walk after lunch that heats me up and if not I try to move about the house a bit. I have a nice warm blanket I wrap round me when I'm sitting a while and put an electric fire on keeping the door shut to keep the room I'm in warm. Also try having lots of hot drinks and meals. An electric blanket on the bed is lovely to get into too and you could even lie there during the day. I'm also dreading the winter as it makes my muscle pain much worse although I didn't like the summer either as the heat drains me! I tend to feel better spring and autumn. A lightbox might be a good idea. I'm thinking of trying one as I feel the lack of daylight in winter definitely affects your mood. Hope you find something that helps!

  • Posted

    Hi Mary,

    I find it hard to move when I'm cold which makes it worse but, I go get a shower and then put on the layers which stops me getting cold. A friend of mine, without cfs/me, wears thermal longjohns and t shirt in winter which helps them. Check out camping/hiking shops for ultra warm layers for cold weather.

    Also, candles take the edge off a room. My house is quite cold in general and i can't use the fire untill someone ok's it (the gasboard said I can't) so the heating, a shower, thermals and candles here.



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