kenalog injections

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Has anyone tried kenalog injections for oral lichen planus?  My nurse told me she treats a couple of patients this way with much success.  She only needs to see them a couple of times a year.  

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  • Posted

    I have never heard of it used for LPbut kenalog is a steroid injection- mainly used in a GP surgery to reduce pain and inflammation in arthritic joints- so it should reduce inflammation generally. Would love to hear more details- is this a specialist nurse in a clinic in UK?
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  • Posted

    Not in the UK.  I am in North Carolina (USA).  At this point, I will try most anything, although the thought of having anything injected into my mouth is a bit daunting!
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  • Posted

    Do you know how she does it? I get the blister type lesions in my mouth but they can happen all over the mouth so I wonder how that would be treated. I guess she couls use dental local anaesthetic gel before the injections, like the dentist does before they put in the anaesthetic injections? I don't think kenalog is actual painful going in, which local anaethetic injections like lidocaine are- have had kenalog injected in my shoulder and it was fine. Do keep us posted about this- it sounds really interesting.
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  • Posted

    Not sure how she does it, and will ask her the next time I see her.  I am very curious about it too.
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  • Posted

    I had my first session of Kenalog injections in my tongue yesterday to treat my Oral Lichen Planus that I've suffered with for 8 months. We had tried Nystatin, topical steroid oitments, "magic mouthwash"... all to no avail. I am at the point where I can eat only Luke warm food & drink. And nothing that has to be chewed. Mostly mac-ncheese and oatmeal. Have even dumped my God in a blender and made like baby food. Gross, but the flavors still there. As I've researched OLP and reLized there's no cure, I've become so discouraged and depressed. So yesterday I got the injections in my tongue. No numbing first- but the needle is small. I got about 15 injections in my tongue which has open lesions all over, even back towards my esophagus. They injected 4cc of kenalog and I'm supposed to go back in 3 weeks to have it done again. My dermatologist here in Nebraska says he has had some success with this in extreme cases. He also noted to have it on the tongue is more rare than other areas of the mouth. I know it's been hell for 8 months, greatly affecting my mood and quality of life. Interested in chatting with others going thru this same thing...

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    • Posted

      Oh man, some typos, lol- I dumped my FOOD in a blender, not my God!
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  • Posted

    I had had two sessions of Kenalog injections in my tongue for OLP.  They don't deaden it first; they inject 4.5 cc of Kenalog with a total of about 12 injections placed in all areas of the top my tongue.  I've had one nurse that did it with very little pain.,  The next one was obviously not experienced and it was very painful.  I've since asked for the nurse that gave me the ifrstinjectiosn to do it wevery time.  I think it's important to NOT stick the needle in very far. (like my second nurse did) Any.... I have found that it helps a lot and is worth the painful injections.  I am getting them once a month.  My dermatologist has said maybe it will get settled down and I won't need them at some point but in the meantime, to come in for injections when it starts bothering me again.  I went 5 weeks last time and it was a bit too long as it was all riled up by the time I got the injections.  I have OLP all over the inside of my mouth, howver my tongue is the worst.  Makes it very hard to eat and is very depressing.  I have had it for about 9 months.  Would love to hear from others that have had these injections, particularly long-term.  It has given me new hope; I pray this curse will go away!!!  I wish there was a real support group but I think maybe there's a very small percentage of people that have this.... all the more need for a support group! 

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