Keto diet and chronic pain

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 I started my journey into the keto diet as a way to try to cut down on the amount of gabapentin I was taking, I figured if it worked for the epileptics, it might work that way for me LOL.  But, I found a scholarly place on the internet chock full of all sort of tidbits about the keto diet and why it made sense for me to be on it for many reasons. I ran across a wonderful video about the keto diet and chronic pain that illustrated exactly where doctors in America are in regard to diet in treating disease states.  These two doctors described putting their diabetic patients on the keto diet and they not only controlled the diabetes, they had a host of other good things happen, one of which was their neuropathic pain DISAPPEARED!  This occurred over and over, so these two docs got together and gathered research to figure out why and presented some rather interesting ideas why. This is just one informational video at this place I found when you combine the words diet and doctor with dot and com.  Some of you on here have shown much greater understanding of what's going on than obviously most MD's have, that's because of the neglect in our education when it comes to nutrition and diet. We were taught just order a consultation from the nutritionist.  We presume the nutritionist knows what to do LOL.  Well, maybe not, with the current food pyramid now falling apart, with my own cholesterol level falling 20 points after a scant 2 weeks on the keto diet.  I think we all need to take a good look at nutrition and diet again.  The reasons that the two doctors found for the keto diet helping with chronic pain were quite reasonable, I am still waiting for it to help with my chronic pain, but I haven't given up hope no matter what the clinical pathway is! In any case the video is well worth watching.

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    Thank you Lynn. You are very inspiring and knowledgeable. I know now that I'd certainly be lost without you and your post. I truly appreciate your care and concerns about me and all who suffer from CRPS. I hope that you are having a wonderful mother's day. You deserve it. Happy Mother's day. Thank you again,

    Jimmy

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    I want to find out more about something that actually works for me me. Every time time I write that word i am moderated,WHY. I know the world what's me to stay in pain. I have tried to do it there way it made things worse. So I'm doing my way and the system still fights me. Once again on my own. Moderate what I am thinking right now

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  • Posted

    I tried to post this whole thing before and I put the website as you would normally write it, not as I did above and it got lost in moderation.  That is why I said the place on the internet was putting the words diet and doctor and dot and com.  The video was called the keto diet and chronic pain.  It was one of the newest videos, but they don't have so many videos that it is that hard to find( there are maybe 30 total).

    Gary, I have gotten moderated to for mentioning the k word.  This place is a UK run board and I am not sure of the legality of k there.  But, they do eventually let the post through with no changes, it just takes awhile.  I have found that k hits just the right receptors for CRPS and is a good drug to include in the pain control bandwagon for myself.  The aggravating thing is that all pain clinics make you sign a contract and one of the lines in it says you can't use any other drugs you get off the street etc.  K is kind of iffy territory as in some states it is illegal, but overall in the US it is still legal.  There was that horrible push by the DEA last Aug to push thru to make it Schedule 1 for no good reason whatsoever and people like me who use it pushed back against them strongly.  LOL more than they expected.  In any case, I care a lot about people like Rocky, who is clearly hanging by a thread, and can't be found to have anything in his urine by the VA.  He can't use medicinal MJ.  But I do think that he might get a lot of good pain relief from k and not have a bad urine, which is why I tried to bring it up, and it got moderated.  But, at least it brought you out of the woods!  Now I know I have a fellow user banging around here!

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    • Posted

      Hi,ya I was on that thread and still am. I have central pontine mylinosis a rare form of brain damage. At one time they told my family I wouldn't make it through the night. After a year in hospitals Ian still alive I think. In my small town I was cut off from most health care my insurance ran out and no one would see me. I was told I had to wait for Medicare to start for me to see anyone that might be able to help me which is still months away. There isn't a day that goes by that I don't think about ending the pain. I can't see any specialist but I am lucky if I get from the bed to a chair anyways that's how I found k iit was out of desperation my days are still horrible but with k and medical mj I get by. At one time I was a successful businessman and the next I was a vegetable fighting to live. I know I am not alone but feel that way. Only 54 and was told I would be lucky to be 58 I've been told I have everything from ms,Parkinson crps and everything in between. Oh well enough of that. Thats for listening. I need to let that out from time to time. Take care, Gary

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    • Posted

      Gary,

      Yes, you do need to let it out. I'm in hopes that you will find the care that you need. I truly understand the fight of getting recognized and get proper care. Hang in there.

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    • Posted

      Thanks, that's why these forums are important to me. From what I read all of you reading mine truly understand. I don't know what's worse, my pain or watching my daughter care for me and listen to me complain 

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    • Posted

      On a bright side with everything else put aside. My daughter finished her first year of college at the university of Nevada Reno with perfect grades which I am so happy to see and very proud of.
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    • Posted

      Well Gary, I had to look that one up and I must say I am impressed that you are a walkie-talkie after having that diagnosis. It sounds pretty grim for most people who get central pontine myelinolysis.  And having spent a horrible week with encephalitis in intensive care, I can't believe you managed an entire year in a hospital and retained any sanity at all. Just the constant sleep interruptions alone would be classified as a form of torture.  As for insurance, I guess the successful businessman part leaves you with too much leftover money to qualify for medicaid but not enough to pay for the overprice medical care you really need, which sucks. At least you can afford K. That isn't cheap. Since I live in sunny, humid FL I have been tempted to buy some plants and set up a K tree farm in my backyard LOL.

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    • Posted

      Thank you, ya no doctors I have talked too heard of it or no what to do with me. Looking back on it. It was pretty horrific. For two months no food or water. I was awake but not really understanding what was happening. I had to learn everything again, read,write use silverware,talk everything. That's why I don't understand it seems people would be interested in me after I survived all that and more. Instead I'm avoided. I do have a home in the Philippines and my x wife is planting a k tree. No joke and your right on insurance mess. Gary

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    • Posted

      K is a supplement it is similar to a coffee bean. It is mentioned in previous conversation as a pain killer you can get online. It works good for pain and mood. Legal in most of the U S but not some country's 

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    • Posted

      Bad night, sometimes it doesn't matter what you take. It's about 3am and everything hurts. I guess it's kind of normal. But it is incredible what becomes normal and what we can take as humans it dose seem like a little bad news will trigger these reactions and set the pain off. Well time to put on some pink floyd and try and forget the pain

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    • Posted

      Thanks Gary. I'll look it up. I know what you mean by up all night in pain, that goes for the day as well. I sleep in increments. Right on with Pink Floyd.

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    • Posted

      Ya, I don't think I have slept more than three hours at a time in years. Some pain somewhere will wake me. But you can put some headphones on and play the wall or dark side of the moon it give me moments of relaxation and I will take anything I can get. Anything to stop obsessing over pain which is almost impossible. Like right now I fell ok but I know that's going to go bad soon. Gary

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    • Posted

      I hear ya Gary. I'll be 51yr old next month and I feel that my life is already over. I'm just hanging around for the ones that I love and love me. I have no love for myself anymore. I'm suffering around the clock. My wife has told me that I moan in pain when I do sleep. Major diagnoses, not sure if you know my full story. I live in SC and I cannot use med maj. Not sure if it would help anyway. Can't find a doc that will give me benzos or pain meds. I cannot do PT in this condition. Have an app with my nurse pract. on weds at VA hospital to fill him in on my major surgery on 2-26-18 and go from there. Last time I seen him the Pain management stopped my meds to get a fresh start which is BS. After that I saw 4 neurosurgeons and I found out "myself through research" what was going on in my C-1 vertebrae and skull. Cranioveratebral Instability. The 4th one confirmed it, had surgery, device what implanted, now I cannot move my head at all. I've had CRPS for over 2yrs and the surgery made it rapidly worse. Trigeminal and Occipital Neuralgia as well. I'm in a constant flare up. This is a short version of my health. I'm couch ridden only on my right side now for over 2 yrs and the last 6 months and going I'm on it at least 22 hours a day. I can't sleep in bed with my wife due to the fact that I may roll to my left side. My right side is breaking down and beginning to be affected by CRPS. I have no life and I'm imprisoning my wife to my illnesses. I feel for her. So I know what you mean when you feel that you are making your daughter suffer as well. BUT,,,, we have to keep hanging on. Take care this evening.

      Jimmy

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    • Posted

      Ya, I followed your story. We are at the same place in life at this time. We just took different paths to get there.
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    • Posted

      This is true. Just kinda wonder where the real cures and treatments are for people with chronic and life threatening diseases. Been thinking that for a long time way before I got ill.
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