Kidney removed one year ago. Fluctuating gfr. Stage 3ckd?

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Hi

I was just reading all these posts for support and I wanted to post and introduce myself . I am 43 years old and lost my right kidney a year ago do to severe upj obstruction which caused severe hydronephrosis. After surgery doctors mentioned my other kidney was functioning fine and to get back out and start enjoying life again...on discharge from hospital my gfr was 71 (never new this until a couple months ago)but this past November I went in for some back pain and it ended up being unrelated thankfully but they ran some blood work and my gfr was at 53? They did repeat test every 2 weeks or so while I awaited seeing a nephrologist.

11/9 - gfr 53 potassium 5.6

11/23 - gfr 48 potassium 5.1

12/8 - gfr 57 potassium 5.1

1/7 - gfr 54 potassium 4.2

Nephrologist said I have stage 3CKD. I don't understand how this has happened so fast.? I last saw my urologist 5 months before this and all was normal. >60 not sure what the exact numbers were and ultrasound and urine were normal.

So far my nephrologist has run all sorts of blood work and urine and everything has come back normal. After my nephrectomy I did develop "pots" posterior tachycardia syndrome.. So my bp is always very low 90's over 70' s and I was put on a salty diet by my cardiologist to help with the low blood pressure and black outs in my vision.

My last blood work that has come back from the nephrologist now shows gfr 75 and potassium 5.2 .. I'm so confused as to what is going on ??? I haven't changed or done anything different other then start restricting high potassium foods allot more. I have my second appt. coming up on the 1st of February to go over all these results . I'm happy my gfr went back up but I am scared because it got so low for awhile . I have no underlying condition or conditions that have been found yet. Can you remain at stage 2 CKD or stage 3 CKD for awhile if proper diet is followed and you have no other factors? My doctor says yes.. but I'm still so scared. Thanks for listening ..

0 likes, 6 replies

6 Replies

  • Posted

    Hi Andrea, How are you now?

    • Posted

      Hi,

      Doing ok. I'm still very concerned about my kidney but my nephrologist assured me that I am ok. My gfr is still hanging around 74%. So that is good news. He did discharge me from the office stating I have no kidney disease and to return if my regular doctor finds any reasons to on future monitoring. I hope and pray my GFR continues to stabilize.

      Thank you for asking 💞

    • Posted

      Glad to know that.

      I have few things in my mind so thought of checking with you. My grandmother (78yr) had nephrectomy recently on 28th jan. She is getting weaker day by day. Unable to retain anything inside body, she is not eating anything. What are the potential complications after surgery? How long it will take to recover? Doctors are not saying anything. We are scared.

    • Posted

      I am so sorry to hear your grandmother is having a difficult time recovering from her nephrectomy.

      Everyone's recovery is different. I have spoke to some who have bounced back quite fast and others quite slow.

      Having my nephrectomy was the worst thing I have ever been through in my entire life. I wouldn't wish it on my worst enemy. I had a misdiagnosed hydronephrosis for four years which led to my nephrectomy. My surgery was done laporscopic but with great difficulty. It was to take two hours but turned into four hours. My kidney was the size of a football and so they had an extremely hard time removing it. Two doctors had to get on the table and literally push on my abdomen while another tried to grab my kidney. In recovery I was in the worst pain of my life. After 3 days I was home. The pain was unbearable even with pain medications. I didn't want to eat either but I think that was mostly from the pain meds. Within two weeks I got my appetite back and tried to get up and do a few laps around the house everyday. After my nephrectomy I also developed "pots" posterior tachycardia syndrome ... So that made my recovery even more difficult . Honestly for me it was around 3 months recovery and 6 months until I felt "almost" human again and I am 43 years old. I still struggle with having "pots" everyday ..my blood pressure is so low because of it so I have to eat allot of salt in my diet so I don't pass out.

      How is your grandmothers other kidney doing? Does she have any other underlying issues with her health?

    • Posted

      The only complication I remember the doctors mentioning was infection in my incision and making sure I was getting up and walking around to prevent blood clots from developing.
    • Posted

      Thanks for replying Andrea. My grandmother's other kidney is fine and functioning properly. She is also a hypertension patient. Currently her ankles are swollen and she's unable to walk due to swollen feet and stitches discomfort. I dnt trust doctors some times because he is not telling us any reason for her sufferings. She is been suggested to have high protein diet as of now. But her body is throwing up everything.

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