Kidneys only working at 22%

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Hi, i am new to this, my grandad has bladder cancer and kidney failure, his kidneys are working at just 22% he cant have dialysis or a kidney transplant so basically they cant do nothing. I live in newcastle and he is in blackpool i want to visit him but i am scared. He is on about going to buy a plot for when he goes. I find it hard to believe as you always think grandparents are going to be there.

I want to know how long has he got left? I dont want to ask him myself sad

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  • Posted

    Amanda, so sorry to hear, it must be heart breaking. It's almost impossible to put a time limit on it I'm afraid, unless his doc had indicated anything regards the cancer. The cancer may have spread from the bladder to the kidneys, speeding their decline, but on the other hand it may not have done anything. When my kidneys failed it took 2 years to get to where I needed dialysis from 25%. It's not something that can really be timed. So sooty, just pray he's comfortable and am sure he would love to see you. Stay strong.xx

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  • Posted

    Sorry to hear about your granddad.  I don't know anything about bladder cancer but would guess that doctors don't want to damage his kidneys further with chemotherapy.  If his GFR s 22%, his kidneys are not yet failing.  My GFR has been 22% for several years now and I am in Stage 4 of CKD.  Kidney failure occurs at Stage 5.  Unless his kidneys deteriorate quickly, this will not cause too much of a problem.  He should keep hydrated and get blood tests to see if he is anaemic, which is something that can happed in people with low GFR as kidneys make a protein that is necessary for making red blood cells.  CKD related anaemia is treatable and might make him feel a lot better.

    Don't be afraid of visiting your grandfather.  Family support is very important when you are ill and your grandfather might not like to ask, but I'm sure he would be delighted to see you.

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    • Posted

      Thank you so much for your reply.

      He has a long list of things wrong with him and the bladder cancer they cant do anything about its his kidneys thats the main issue for him atm. Hes constantly going for tests and hes on all kinds of tablets including anemic tablets.

      We are going to drive down tonight and he cant wait to see us.

      Sorry to hear you are going through the same. And thank you so much again xx

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    • Posted

      So glad to hear you're going to see your grandfather. I know that will be the best medicine for him--hopefully you will find it to be special as well. I have numerous fond memories of the time I spent with my mother after she received a terminal cance fiagnosis. I can't tell you how often they be thought about the times she and I spent together during her final 4 months of life. She was weak. She slept a lot. But when she was awake we did things together. W pieced a portion of a quilt top together. Her siblings sent the quilt pieces to us. Each piece was cut from a swath of cloth with special meaning, e.g., their first child's first school dress. And each swath of cloth was sent with a short story telling us its significance. We had such a wonderful time working on the quilt top. My relatives and I finished piecing the quilt top at the reception got lowing mom's graveside service. I have the quilt today. When I miss mom's hug I get her quilt out and wrap myself in it.

      I suspicions n your grandfather has come to the ms with his medical condition. He will want to be sure you know how much he loves you and so forth.

      Let us know how your visit goes. Just as taking my mother back to see her siblings right afte she received the terminal diagnosis was (and has remained) the hardest thing I've ever had to do; I am soooo glad I had the chance to take that trip with mom. I wish the same for you with your grandfather.

      Marj

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    • Posted

      Sorry for all the typos--my auto correct isn't as helpful as I'd like. I hope you can fight your way through my post🐶

      Marj

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  • Posted

    Hi Amanda sorry to hear about your grandpa. People with kidney failure or decreased kidney function can live like that for a long time. It depends why his kidneys are failing. Did they start a new med that doesn’t agree with him? Did he always have kidney failure? Is it acute or chronic kidney failure ?? Once you know why the disease is happening then it’s easier to get an idea of the outlook. Good luck stay strong for him!
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    • Posted

      Hi paula thank you for your reply. He was dehydrated as he became poorly and cudnt eat or drink and he went into hospital and its effected his kidneys and he has stents in that has to be changed every 6 months and has to where a bag now too. They dont really like to tell me much hopefully i find out more when i go down tonight..

      Thank you so much again x

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