Killian Jamieson Diverticulum

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Hello

After being treated for globus and cough because of laryngeal sensory neuropathy, we did a chest CT scan and found a small Killian Jamieson diverticulum on the right side.

I don't know exactly where that place is, but I always feel something on the right side of my throat.

I also have other issues such as throat clearing on the right side which has improved and pains on the right side of my chest, neck and back sometimes.

There's no reflux from the stomach apparently. However I wonder if there could be reflux from the diverticulum itself. I tread online and usually these diverticulums are small and asymptomatic. But I don't know and I am a bit scared

The diverticulum was never picked on any of my barium swallows or endoscopy.

So I am unsure if the symptoms left that I still have are because of this.

Anyone has experience with this diverticulum? There's little information about it due to very few cases being reported..

I am actually tense and scared as I've been too long with symptoms and nobody knew what was wrong with me. I am a bit better in the recent time and also using gabapentin, but still there are things that make me question what they are..

Thanks

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  • Posted

    I have not had personal experience of this and it is indeed rare.   It is, as I understand it, a pouch that protrudes from the normal wall of the oesophagus up around the top part near the larynx.   I think it ought to be picked up on an X-ray and/or endoscopy, and I am sure that this would be so if this condition were suspected prior to the test.

    ?They can sometimes be repaired with surgery, but it is a specialist job  because it is within the chest area, and I would imagine that some surgeons would understandably take the view that it is worth monitoring it for a period to see whether it gets better or worse.    The surgery is a major undertaking and there is a balance, not least in your interests, as to whether this is worthwhile.

    I think the chances of finding somebody else with this condition on this site are small, but you never know....

    ?I suffered from a pouch that was lower down.   It accumulated saliva, and I was worried about it at one stage.  Mine was created, I think, because of trouble with my swallowing because of an earlier operation for a ruptured oesophagus.   At one point I was violently sick, and the vomiting action appeared to have resolved it and 'straightened it out' 

    ?I imagine that how well you swallow, especially food, would be an issue: if you are managing OK at the moment, it might just be something that you can live with, but you do need to listen to the advice given by your specialists as they are the people who know your condition and they are the experts.

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    • Posted

      Hello

      Thank you very much

      How can you know that thevomiting action resolved the diverticulum? Did it dissapear?

      To be honest I have lots of problems, not just swallowing. I also have breathing issues and it's not reflux. But part of the damage of excessive swallowing issues and coughing. But now I wonder if part of the food is regurgitating as I still have some throat clearing. It's really confusing.

      You tell me to listen to the advice of my specialists, but most of my specialists and doctors have been real sh*t. This would hve been so easy to resolve if they didn't complicate things from the beginning as my problem was caused by a throat infection that could have been really easy to solve six years ago...

      Thanks

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    • Posted

      I knew it had been resolved because when I swallow, I no longer get a click and a gurgle a few seconds afterwards.

      ​I think having a number of conditions does make things much more complicated, and I hope that you improve soon.

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