Klippel-feil Syndrome
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:D :D I AM A 36YR OLD WITH KFS IT HAS NEVER GIVEN ME ANY REAL PROBLEMS UP UNTIL NOW I HAVE HAD TO GO ON DEHYDRACODINE FOR THE PAIN IF ANY ONE NEEDS ANYTHING ANSWERED I CAN TRY AND HELP
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Guest
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Guest
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I'm 19 and have Klippel Feil, i was diagnosed at birth with KFS and had an operation to correct Sprengal's shoulder aged 4. I have a degree of hearing loss in one ear which i'm told may be linked to KFS. As far as pain goes, i started to have pains in my shoulders and upper back aged 16 and managed to find a chiropractor who knows about KFS in Bath.
In regards to clubs etc for KFS, there's a facebook group with a surprising number of members from around the world! Also, theres some forums out there too!
Are you guys from the UK, most people i've spoken to are from the US!
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lynne17389
Posted
had two sons, now have 6 grandchildren. I worked full time for 30 years, passed my driving test, although had to use mirrors for reversing, So if you have this syndrome you can do most things if you try. The only
thing that annoys me is the fact I cannot wash my own hair as my arms do not reach up to my head. Now I live on my own has my husband died 7 years ago. I have never met anyone else with this condition. If there is anyone in the Cheshire area please get in touch as I would love to meet with you.