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I am looking for people who have KTWS. I was diagnosed since my birth. I have never really thought of it as an obstacle but as Im getting older (im 27 right now) I realise that how I do my daily things and how I deal with pain is not "normal". Where i am from there is not much known of this syndrome and I am very curious how other people deal with their KTWS in their daily life?
How do you deal with the pain, with work (or school?) , with relationships and your thoughts about the future and kids?
I have KTWS in my right leg and I have walked most of my life with cruched. It never stopped me from doing what I wanted in life, but slowly I get a little more obstacles.
Would highly appreciate if you would send me a message.
Emis moderator comment: I have removed the email address as we do not publish these. Please use the Private messaging service.
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