Knee is total agony.. Chronic Pain 🙁

Posted , 6 users are following.

Hi, I'm new to this site so bare with me... I have had excruciating pain in my right knee for 3.5 months, have only been to doctors 2 weeks ago as it's got so painful it's disturbing my day to day & now at night in bed.

The pain is at the front & both sides.. It radiates to down my leg & round the back now.. Turning over in bed, resting, walking, getting up stairs or even sitting or standing I am in agony.. My doctor checked it wasn't my hip or ankle & said it's definitely from the knee cartlidge.. Even the Medic where I work has said I've done more damage for going so long without getting it seen to..

Anyway, I've had an X-ray which bones are fine.. Now doctor has referred me to Hospital to see knee specialist, i go back to doctors on Thursday for extra pain relief as Paracetamol just don't touch me.. My dad has had wash outs in the past which ended in TKR In both knees.. Now I know what pain he went through many years ago.. ๐Ÿ˜ณ

Has anyone else suffered really bad with this & what did you do for relief? Painkillers & Hospital appointments? What was your outcome?

Would appreciate all advice & what happened... Many thanks ๐Ÿ‘

0 likes, 10 replies

10 Replies

  • Posted

    Hi Ange!

    I'm so sorry to hear that you are suffering so much. I can indeed sympathize with you on that! I went 'round and 'round with insurance because there is a protocol that they follow (x-rays, physical therapy, cortisone shots, arthroscopic surgery, etc.) BEFORE they will consider a person for any knee replacement.

    In four years of wasted time my knees got worse, pain increased, and my X-RAYS showed INCREASED damage. I was BONE-ON-BONE with no cartilage. EXCRUTIATING pain that radiated from knees to ankles and from knees to hips. I had very limited quality of life.

    Fast forward to last June. I had my first TKR. Honestly, the surgery improved my quality of life almost immediately! The pain I experienced was HEALING PAIN, and that awful radiating pain and throbbing I had had for years was GONE! Of course there was recovery as you have following all surgery, but I felt better day by day. I KNEW that without surgery I would continue to feel WORSE day by day.

    Three months later I had my right knee replaced. It went even better than my first.

    Nearly a year post op from # 1 surgery and eight months with # 2, I am able to stand and walk as long as I want. I have arthritic pain in OTHER joints, but my KNEES feel great. I worked outside in my garden about eight hours the other day -- needing breaks for iced tea but not to sit down and rest every few minutes like before. My knees were strong and steady on uneven ground. Before, I was extremely unstable even walking on a flat surface due to my bowed knee bones and no cartilage to act as a shock absorber. HUGE IMPROVEMENT to my ability to do things I enjoy doing WITHOUT constant pain.

    I wish this improvement for you, too!

    You mentioned that your dad experienced this prior to his TKR surgery. There is osteoarthritis on both sides of my family, so symptoms sounded VERY familiar when they began. The disease causes cartilage to deteriorate. The loss of cartilage causes the bones to rub together. Our bodies weren't designed to have this happen, so PAIN...LOTS of it...happens. Medication can help, but even medication can't remove the fact that knees are NOT functioning as they were intended to function.

    Proper X-RAYS will show the condition of your knees. I hope that you will get relief from your pain and treatment that will lead to improvement.

    For me Ibuprofen which is an anti-inflammatory helps better than any prescription medication. My best pain relief, however, was SURGERY to eliminate the CAUSE of my pain!

    I hope this helped to answer some questions.

    • Posted

      Thankyou Cheryl for your reply... It is good to k ow I'm not alone & that you have shared your experience.. I'm glad your TKR went well but yes it's a long road until it gets to that stage like my dad had..

      I've been to the doctors again today & my hospital appointment is being rushed through so hopefully a few weeks I should hear. In the mean time I am now on Oramorph & Zapain.. 1st night as only got prescription today. I'm resting now as I've walked all day in work & as I'm supposed to be on light duties I'm still doing the work of 5 people so I'm shattered.

      Up at 6 am again so I am looking forward to a weekend of resting my knee..

      Will let you know how it goes.. Glad your feeling much better with your knees... There is hope for me yet ๐Ÿ˜€ Xx

    • Posted

      Hi Ange!

      Of COURSE there is hope for you! Recovery just takes A LOT longer than ANY of us ever expected!

      I just keep reminding myself of how detailed and complicated the surgery is and how much TRAUMA takes place in the body. Then I am feeling better like I REALLY EARNED taking a break and having a nice cup of tea!๐Ÿ˜Š

      Everything will go fine.

      Sending prayers of patience, strength, and calm to you tonight!๐ŸŒธ

  • Posted

    You need an MRI which will show soft tissue damage such as meniscus and cartilage damage. Until you get that you add hould stay off of it as much as possible, maybe add an over the counter nsaid type anti inflammatory. Ignoring it or trying to work around it is probably going to add more inflammation consequently, more pain. Ice the entire area for about 20 mins at a time. Talk to your primary care Dr. immediately about better pain meds. Not getting the cart before the horse but suspect you might be looking at a scope and some sort of repair. Yes, you are not the only one that has found out the horrors of knee pain the hard way. Its very hard to explain until you have been there. Dont expect a much different reaction reaction from your co-workers, friends and family than you had with your dad. Let this forum know the outcome and you will get much help and information from those that have suffered through it.
    • Posted

      Thankyou & yes I will most defiantly keep you updated.. I have been back to my GP & am now on Oramorph & Zapain, I can't take NSAIDs as I am an asthmatic & tbeymaje my chest tight.. But as for today's new meds, I am now relaxing with my knees up as ive been on them since early this morning..

      I couldn't wait to get home from work to rest them... I am not used to discussion boards but have found this to be very helpful with people who know what I am going through... I don't wish this pain on anyone but I'm so glad others have had it as it helps to know & have good advice from you.

      I will keep you posted on how I get on day to day & I should have my hospital appointment through very soon as a MRI has also been requested ๐Ÿ‘

    • Posted

      I'm w u ofg.... U have to experience this in order to understand the extent of this type of surgery. Different for everyone, I'm 11 weeks in n only at 100 degree bend passive. I keep up the exercises n massages scar tissue deeply ( ouch). ย Getting there slowly, but everyday seems to bring a new improved change. Goin to see doc next week, hoping for better results. This whole thing has traumatized me sometimes mentally n physically, the whole body gets affected, my shoulders are killing me (ouch again). I try meditation seems to help a lot. Cleveland clinic in the states is practicing it for people with terminal ย pain, so heck I'll try anything, just about. ย Thank g-d for all of u n this website. It is my source of strength. Among other things, maybe on my bday, June 19 ? ย I just want to drive again for petes sake ๐Ÿ™€
  • Posted

    Hi ange I've just had TKR 19 days ago. I'm 53 and for the past 14 years have suffered pain constantly I was fobbed off as being to young for surgery in December 2015 at a knee clinic I was told to come back in 10 years, my doc told me to go back and push for a referral and in February the hospital said it was so damaged that only option was new knee, over the last 4 years ย I've got by with cortisone injection which were great at first but more you have them the less effective they become, but might be worth asking doc about them
    • Posted

      Oh Debbie you have suffered all that time & had to endure years of pain โ˜น๏ธ I have had this pain for quite some time & it's getting worse but couldn't not suffer for years like you have.... How on earth did you manage all that time? Cortisone injections I had in lower back few years ago & the 1st shot worked but 2nd time 6 months later didn't take & I was in agony... I am now on strong my pain killers & waiting for MRI...

      My dads TKR was 4 years apart on each leg.. He hasn't looked back since... But he suffered from in his 30's & reached 80 last Saturday... ๐Ÿ‘Œ

      Today I have found it difficult as work was so demanding, I am just glad to be home & resting before another early day tomorrow... Roll on weekend...

      Will keep you updated & im so happy that you finally had your operation after so much suffering... Xx

  • Posted

    Small update on my weekend... Zapain & Oramorph make it more comfortable... For certain amount of time!! Thought I felt great yesterday so ventured downstairs & did some house work, sat in the garden for a while then boom!! The pain came back all of a sudden with a vengeance..๐Ÿ˜Ÿ

    Took myself back upstairs to a cool bedroom with fans blasting in all directions, felt sick & slept most of day...

    Dreading work tomorrow, feel like sawing leg off at the knee ๐Ÿ˜–

    Can't take meds when working so will have to suffer til I'm home, feeling sorry for myself at moment & need to man up & get on with it ๐Ÿ™

    • Posted

      Hang in there ange, hear u and have read thru this discussion, sounds like you're getting lots of good suggestions n encouragement. Lots that I can say, but the people have u covered. ย All I can send are healing n pain free prayers your way... ๐ŸŒฌ๐Ÿ˜‡๐Ÿ€ , best... Kpย 

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.