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Hi everyone, I got diagnosed about 3 years ago with AS after countless doctors appointments, blood tests, x rays and an MRI. I have just about managed to cope with the hip pain over the past couple years but for the past 3 months I have developed intense upper back pain. During the day I am stiff but at night it has been really bothering me, waking me up after 4 - 5 hours every night with a sharp stabbing pain between by shoulder blades. After I get up and wander around for an hour or so the pain subsides but during that time it feels as though my chest is being restricted and I find I can only take shallow breaths. I am a 24 year old female and I am fairly active - walk 2 - 3 miles every day, but this past week I have also noticed my knees get slightly swollen and painful when I rest. I have been to see a rheumatologist and she has put me on the physio waiting list (should hopefully be seen by Christmas..) but in the past I have found physio only makes my hip symptoms worse. This is really starting to get me down and lack of sleep is driving me crazy. Does anyone have any advice or suffered similar symptoms? I feel all alone coping with this at the moment and could really do with some friendly advice. Thanks.
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