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Knee problems for 15 months now

Posted , 7 users are following.

nikki99004
nikki99004

I am in desperate help of some advice. Don't seem to be getting anywhere with any doctors. I will.try to sum this up.....June of 2017 I was diagnosed with Lyme disease. It mainly effected my knees and jaw. Was put on iv treatment and oral. 3 months later Lyme is negative but my body is going crazy. Anyways, I was going twice a week to have my knees drained. Orthopedic surgeon finally told me he couldn't drain them anymore because he was doing more harm than good. In November I was admitted into hospital from huge knees and not being able to lift my hips or thighs. I was wheelchair bound. I'm 34 years old. Fast forward to last week... FINALLY got MRI of both knees. It showed of course large effusions in both, sprains to different ligaments and muscles, degeneration of acl, kneecaps have repositioned and some small bakers cyst. But in the MRI report it also stated that a lytuc lesion and fracture to my distal femur was seen and the radiologist recommended to my doctor to have dedicated MRI of my femur. Well my doctor didn't know I had already picked up the report so when I called to get results, the medical assistant said the only thing on there was that I had fluid and my doctor would be referring me to have it drained and biopsied.....ummmmm......nooooo.....that was not the only thing on there......my question is this.....am I over reacting?? Are the other findings just no concern? I'm not sure if I should call her out on it or not??

0 likes, 11 replies

11 Replies

  • johnny17592
    johnny17592 nikki99004

    Posted

    Hi nikki

    Call her out you must I can't believe you had to go through this for the last 15 months it just sounds like gross negligence to me I would demand a second opinion straight away especially at your Yong age there is obviously some underlying issues keep us informed if you will I hope you get some relief soon

    Johnny. Ps are you in the UK.

    • nikki99004
      nikki99004 johnny17592

      Posted

      Thank you very much! I am seeing my orthopedic surgeon tomorrow for him to review disc and report. Hopefully I will have better answers.
  • Paddycakes
    Paddycakes nikki99004

    Posted

    I would call your orthopedic surgeon and go over the results. I had a copy of an MRI for my knee before I saw my doctor and I was on Google for the meaning of everything and made me more upset. It was not as bad after talking with my orthopedic surgeon. Make an appointment and talk with the doctor.
    • nikki99004
      nikki99004 Paddycakes

      Posted

      I actually have that appointment tomorrow at 3pm. Thank you for your reply. And you are right, Google can scare the crap out of you.
    • Paddycakes
      Paddycakes nikki99004

      Posted

      Good luck with your appointment. My physio therapist tells me to stop searching. She knows I get upset. Let us know how your appt went.
  • pattiecake
    pattiecake nikki99004

    Posted

    Wow, I am so sorry you are dealing with so much especially at such a young age. If you think it would make you feel better - call her out. But either way, I think you should definitely get a second opinion. It never hurts to do so. Wishing you good luck and good health!
  • nikki99004
    nikki99004

    Posted

    Orthopedic surgeon reviewed disc and report. First thing he said that caught his eye was the lesion....he did an x-ray to see what he could tell but then said he wanted to send it to the radiologist that he uses just to get his opinion.....other than that he did say lots of fluid. The other things he says is caused by the large effusions and if we can get the fluid out and the inflammation to stop the other things will get better
    • Paddycakes
      Paddycakes nikki99004

      Posted

      It sounds it went fairly well. How do you feel about it. Maybe second opinion from radiologist or orthopedic surgeon.
  • Zadok1
    Zadok1 nikki99004

    Posted

    As a nurse and having been a patient, it's always best to  rule everything out. Expecially if it's suggested by another doctor. Might you be facing TKR? BLESSINGS!

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