knees
Posted , 8 users are following.
I have had PMR for 2yrs 2months been on steroids almost 2 years and have many ups and dows like everyone. I am very fortunate and am now on 3.5mg which I have been on since March and cannot get below. most of the pain discomfort has one although I still get some neck/shoulder pain and occasional back, but the pain seems to move down my body it is my knees that are causing me the most problems. I am hoping that it will get to my feet then walk away (some hope).
The pain in my knees continues through the day although not as bad as when I first wake up. It is really annoying as I find that if i walk for anylength of time I pay the price the next day.
Has anyone else experienced this.
I have had previous x rays and it is not osteo
Linda
0 likes, 11 replies
BettyE
Posted
Sorry about your knees and the walking problems. I and others have found the pain moves around. I have had PMR twice and the pain is completely different this time being toatally absent from my arms which first time were so painful I dreaded anyone touching me. This time, although there was some shoulder and neck pain the worst were my legs; thighs, knees, calves and, yes, I do have to ration the walking. Not too bad on the flat but hills and even slopes are best avoided, I find. So far it has not exited through my feet I love your hopefulness!! :run That's us when it goes out through our toes )
My second bout began in Feb 2008 and has been a roller coaster.
I know how infuriating it is to be stuck on a dose for yonks when all we want is to get off steroids completely. It does happen but is never a straight line curve if you understand me. 3.5 is really quite a low dose ( I am currently on 8.5 ans aiming to reduce by 0.5 per month. So far not too bad but going from 9 to 8.5 as of two days ago, I am not quite as chipper as I was last week. Others will confirm that this is not unusual and often a couple of days patience and fortitude is all that is needed. but not always and sometimes we have to increase the dose again.
[size=18:b98b41b134]Eileen,[/size:b98b41b134] you suggested this to me when I wrote about what felt like groin strain. I decided to hang on and the pain is lessening by the day so perhaps it IS just groin strain. Plenty of opportunity here to strain anything.
[size=18:b98b41b134]Linda[/size:b98b41b134] So this time I was ok but from past experience I now know it is not worth suffering if an increased dose will help and, believe me I learned the hard way and was very grateful for all the info on this forum
I also found that there does not seem to be a very high correlation between the dose and the persistance or return of the pain. Sometimes quite a big drop is ok and others just a fraction will make a difference.
You might want to look at my first time reduction schedule. If you scroll down to Reducing below 3mgs I think it's there
Keep coming back. You will hear from lots of other sufferers. We all talk a lot about ourselves it seems but that is the whole point. We are not professionals but we ARE experts in how we feel and what has helped us. Good luck and best wishes. BettyE
odiecass
Posted
3 years ago [I was 59] the worst illness I had in my entire life was the usual cold and sore throat, I exersise everyday [bike riding], do not drink, quit smoking when I was in my 30's, now its been PMR, colon cancer last year [caught in the very early stage by a colonoscopy], ostioperosis [theres no spell check on this site] from the Pred and now I came home from a bike ride and found a lump just below the breast bone which hurt like you know what. So its off to see the doc again today.
I was going to delete this, I just needed to write it down because its so frustrating, but it is so nice to have a forum that is full of understanding people going through similar problems that I will post it. I read this through and its way off topic, sorry about that.
Linda_Williams
Posted
Take care and best wishes.
Linda
EileenH
Posted
Greens
Posted
MrsO-UK_Surrey
Posted
What a shame that you have suddenly developed knee pain but I'm not sure that I would rush to up the dose again if I were you after just a couple of days especially as it is only one knee and it has never been a symptom in your 4+ years of PMR. Do you think it could be a strain that you haven't been aware of doing or even osteoarthritis as unfortunately arthritic conditions can arise from PMR? Could you perhaps try sticking at 3.5 for a while longer and then try tapering slowly to 3 rather than alternating with 2.5 and see if there is an improvement? I've been finding it very much more difficult to reduce on these very low doses probably due to the percentage drop being so much greater but we'll all get there in the end won't we and the flags can go up on the forum! :lol:
Very best wishes,
MrsO
Greens
Posted
Thanks for your advice. It seems it is gout in my knee which I am now dealing with with colchicine. Much better over the weekend and hopefully now on the wane. Off to see the Gp on Weds but have stuck with my Prednisilone dose and will have more blood tests next week. All in all much better :D . Glad to hear you are heading in the right direction as well. It sure does take its time!!!! Keep smiling everyone, there is light at the end of the tunnel... Greens
Linda_Williams
Posted
Like you I am on 3.5mg even I too seem to get pain at night take 2 pain killers at bedtime which olny slightly helps as they seem to ware off by early morning. But like you after I get up after 1 hour or so I am fine. This has been going on for about 1 month not getting any worse/better so I am staying on 3.5mg as other than that I am fine. No more reducing though at the moment.
My blood results are all normal.
Keep well.
Regards
Linda
MrsO-UK_Surrey
Posted
mrs_k
Posted
In the Arthritis Magazine, Summer Edition there is a load of information on GOUT and most useful is that it should be treated preventatively as well.
The Mag is available on line.
Mind I had pseudo-gout, which is different from gout.
But hellish painful just like gout.
Well worth a read.
Spammy
Posted
I am at the same stage as you, had PMR for just over 2 years and the pains are mainly in my knees and hips occasionally in my arms. But I have only managed to get to 8mg at present having been down and gone up again. I have heard someone elso mention that it travels downwards, hopefully out at the feet.
Best of luck
Spammy