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I wanted to ask whether anyone with AS has experiened any form of spinal deformation as a result of AS. Our family is riddled with severe back problems and I am the only one who has been diagnosed in the AS family of illnesses. However, my brother is actually further along in his back problems. His back has gotten so deformed that it has caused severe pinching of the nerves and has effectively left him a paraplegic. He suffers with kyphosis of the neck to the point where his chin pretty much rests on his chest and doctors wanted to pretty much fuse his whole neck which he declined. But his neck is likely responsible for his paraplegia. He also has moderate to severe scoliosis in parts of his spine and the level of pain that he has gone through has left him dependent on very strong narcotics. As I said, he has never seen a rheumatologist and has never been diagnosed with AS but I suspect it. I also have seen pictures of AS sufferers who have kyphosis and other spinal deformities. Do his problems ring a bell to anyone on this forum? Have you seen AS lead to such deformity of the spine?
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