Lab results...
Posted , 12 users are following.
Welll the lab results came in the mail today. .C.-Reactive Protein was 0.3
and the ESR was 7
I'm taking 6mg of Pred. but still don't feel great.... especially with the fatigue, which can be very inconsistent. Some mornings start out good and then by the afternoon I'm so beat it's crazy or the other way around. Out of bed my legs and arms feel like they will fall off and are difficult to move and this can last all day. Occ. I still can experience some shoulder "achyness" and neck aches. Also the tooth ache also comes and goes !! I don't understand the inconsistent days of bad and not quite so bad.
The only comment from the physician was "neither of which showed significant inflammation" Not exactly sure what that means...I guess it's not like you are either pregnant or not !!!
Hope everyone is having a tolerable weekend.
All the best, judy
3 likes, 49 replies
leonard12916 judytal
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judytal leonard12916
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Bert5560 judytal
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EileenH Bert5560
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I don't understand why you quit taking the levothyroxine - and it COULD account for some of the problems.
Bert5560 EileenH
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I guess I quit taking my Levothyroxine because when I was on it I tore the rotator cuff (at that time I didn't know it was torn) and thought it was also starting to make other muscles hurt. My PCP prescribed it for me and I wasn't sure she should be the one prescribing. Because my HGBA1c is also been bordrline I"m going to make an appointment with an Endocrinologist. I still say it seems strange all of this started with the hypothyroid issue.
judytal Bert5560
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Probably not a good idea to go "cold turkey" with your meds. I'm not a physician. Be careful..
Judygirl judytal
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after l8 months, just tried 3mgs for two days but am far more
comfortable with 4mgs. just for now. At 6mgs. I had exactly
the same problems but it really does improve, be kind to yourself
rest and do whatever it takes to be comfortable, I find a good hot
shower on my shoulders and back in the morning with 4mgs of pred.
sets me up for a good day, still feel fatigued but there are many worse
off than I so I'm thankful. Love to all.
Mrs_CJ Judygirl
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Fatigue is also my worst symptom and after 2 1/2 years, I almost can't remember what it felt like to not be tired all day. The only thing I have found that helps is to get some kind of "easy" exercise such as walking, gardening, light house cleaning.....and I'm just getting ready to try short bike rides.
I see above you tried reducing by 1 mg but at our low doses that is a pretty large amount - 25%. But perhaps you are on coated Pred and can't cut them in half.
judytal Judygirl
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I guess I'll stick at 6mg for awhile. I really have to hold myself back to not reduce !!!
Thanks for your thoughts. I'll try to be patient....
Hard for people to believe you're feeling like your arms and legs don't want to move cause they can't really SEE anything.
All the best !
julian. judytal
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sue50037 julian.
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constance.de julian.
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EileenH sue50037
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"the dr weened me off as fast as he could" - but you CAN'T dictate the reduction process. I realise the BS problems but there are other ways of managing that too to make it less of a problem.
julian. constance.de
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4 months of pain was too long without pred. I struggle with the idea of 2 1/2 years.
Some variety of stubborn pride kept me trying to put my own t-shirt on each morning. A different contortionist act every day, with varying results, and screams. "Don't worry, just putting my t-shirt on" sounded a bit weak .....
EileenH julian.
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If I didn't get dressed in the first 5 minutes after getting out of bed I'd had it. I couldn't bend enough to reach my feet - one invents all sorts of ways to get a pair of knickers over one's feet and pull them up. And men at least don't have to get a bra on...
Bert5560 EileenH
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You say getting out of a car after a 10 minute ride was excruiating. Do you mean hips, thighs, back of knees?Sometimes my knees feel like their popping out the other side, and I hobble or I guess you could say lurch!
constance.de Bert5560
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EileenH Bert5560
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Absolutely Constance - so I always had the seat right the way back to get in and get hold of and fasten the seat belt and slid it right back before trying to get out. The language used if OH had driven the car last and hadn't moved the seat back was most unladylike!
sue50037 EileenH
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tina-uk_cwall sue50037
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all the best, christina
EileenH sue50037
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sue50037 tina-uk_cwall
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sue50037 EileenH
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julian. sue50037
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Probably not much help but here goes.
Pre workable PMR diagnosis a doctor in Malaysia suggested "frozen shoulder" and gave me some non-steroidal anti-inflammatories. They didn't really do much for the couple of weeks I had them but just enough to make the difference between "surviving" and preparing truck for shipping. The swelling in my right hand was noticeably reduced, but nowhere near as much or as quickly as when I was given pred a short time later.
I haven't a clue what your posture is like, and I'm sure you've tried this sort of stuff but again, paying attention to it didn't get rid of my need for a back op, but it certainly helped my recovery. Hurt lots when I laughed at rehab nurse when she said "we're now going to do one sit up". And when the PMR first hit I suspect it was mixed up with squashed nerves (a definite event and a different sort of pain). Even silly (to me) sounding things like sleeping on my side with pillow between my legs that helped spine be just a little straighter. Pillow height absolutely critical, we have a collection.
constance.de sue50037
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Keep posting. WE care!
sue50037 constance.de
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