Posted , 13 users are following.
Lichen sclerosis has improved over recent years. However, I am now experiencing a disappearing Labia due to shrinkage.
Improvement was so good that I was moved to annual check ups with the next one due towards the end of next month. So not long to wait!
Has anyone else had this? It may be unrelated to LS!
2 likes, 17 replies
We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.
Wee_Dugie kathleen65757
Posted
ann67814 kathleen65757
Posted
kathleen65757
Posted
LS has moved from the front to the back area so it is a puzzle.
Nancy_K_B kathleen65757
Posted
Oh hi again, Kathleen, my LS started for me in the anus and moved forward. So far I've found that the ladies here who've mentioned that diet is absolutely imperative are totally correct. argh.
OH! but I want to mention that one doctor and autoimmune specialist says that statistically if a person have one autoimmune disease they are at risk for up to SEVEN! So that's why I've been working So hard to get to the absolute nutritional sufficiency status to use as best PREVENTATIVE I have access to.
ah, yes, and another of literature search items is that doctors now realize that there must be common causes to autoimmune regardless of bodily location/outbreak. So far, most of the articles that I've found keep popping up with Vitamin D deficiency.
kathleen65757 Nancy_K_B
Posted
What I understand of autoimmune is that the body turns on itself so I am not sure how diet connects to that.
Magnesium is another good one to have and this is for my,osteoporosis as well.
The first autoimmune one I had was many years ago I lost some teeth and the dentist said he was at a loss to understand why. It was like my body was attacking itself.
Then I got Crohns. Diabetes is another one. Back issues could even be that as my GP said the weird thing happening in my sacroiliac could be autoimmune. So I probably have five at least.
suzie37971 kathleen65757
Posted
I started at the back passage and so this was very confusing .
Treated for haemaroids 🤦🏻???
It was only when i had white patches apear on my clitorus that i began to question it sadly 😬
dani8979 kathleen65757
Posted
Diet is crucial...I eat low carb, sugar free, wheat free, lots of vegetables and invest in good supplements, I exercise, do pilates and yoga, stress is a major and it needs to be managed, find ways of relaxing, meditation.
Nancy_K_B kathleen65757
Posted
HI Kathleen, I'm so happy to hear that you have had improvement for years. I'm still in the mode of how to manage it - only 4 months since recognizing this LS, I'm 72. Can you tell us what you think has worked best for you? Do you have to still follow a strict diet protocol? have you found that any particular nutritional supplements are key to your health? THANKS so much, Nancy
kathleen65757 Nancy_K_B
Posted
.
LS is autoimmune so it is hard to know what would stop that. I have other auto immune diseases as well.
I have advantan fatty ointment and dermeze and keep the area dry as advised by my specialists. The ointment is like clob but not as potent and the dermeze is similar to Vaseline and just keeps the area moisturised.
I am more concerned with the shrinkage at the moment as LS around the back is nowhere near the problem it is in the front part. Well that is what I think anyway.
I think LS runs its course and being vigilant with the ointment or cream is important. It may never go entirely but it should be manageable.
Guppy007 kathleen65757
Posted
kathleen65757 Guppy007
Posted
101reebok kathleen65757
Posted
Morning kathleen
Both my inner lips have totally disappeared. The one side looks like it was never there and the other side is a long wiggly dark line with a tiny bit of the lip left near my clitoris. At the momoment I still have the hood over the clitoris but that has shrunk a bit.
😢😢😢
kathleen65757 101reebok
Posted
dani8979 kathleen65757
Posted
susan43705 kathleen65757
Posted
My labia just disappeared and I can't beileve it. I'm so tired of dwelling on my VJ all day long. I'm taking the advice of a lot of the information on t his forum and don't see any improvement yet, but I'm trying to be hopeful before I lose my entire VJ. There is so much information I don't know what to do first or is it a cmbination of things. Just not sure. I'm so distraught right now. It's so weird losing a part of yourself even though outwardly no one will notice.
dani8979 susan43705
Posted
Just take all the info in slowly, try to adapt and change your diet...sugar free, wheat free if you can manage, lots of vegetables and fruit, lean meat and fish, no alcohol, take good supplements and vitamins, find ways to deal with your stress, relax, meditate...
You must get into a routine looking after yourself, applying the steroid cream and barrier, using bicarbonate of soda mixed into water to rinse after every visit to the loo.
Be strong, I know it is hard in the beginning and a complete shock...but the treatment works if it is done correctly.
Guppy007 susan43705
Posted
Hi Susan, it's a bit terrifying at first, but honestly, once you read as much as you can on the subject and apply the creams/oils etc and understand it more it becomes easy to manage. What is it that you are particularly confused about?