Labia minora quickly disappearing!!

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How exactly can fused skin (labia minor, cltoris) be unfused/released from borax or baking soda baths? Isn't the skin healed and all one now? I need some happy stories sad

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  • Posted

    Perhaps someone else can give you really good news.  I have been using borax for a few months now.  Nothing has unfused but further deterioration seems to have been prevented.  For me that is good enough news.  Best wishes.
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    • Posted

      Hi how are you using the Borax? Has this helped with your symptoms as well?

      I’ve got some to use but I’m still healing from my biopsy so not sure if it will be ok until I’m fully healed 

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    • Posted

      I use Borax 

      I bought a portable bidet (cheap as chips off Amazon ) put 1 good teaspoon of Borax in 3 litres of water 

      amount can be adjusted to your own needs. ( please remember Borax is a laundry agent so should be used with caution) 

      Please ladies ensure the Borax you use is 20 Mule Team it is 99.9% pure with no nasties added. 

      I used it only 6 times but no longer as my vaginal /anal area seems to be in remission 🙏🏻🙏🏻 So I am only using a teeny tiny bit of Betnovate twice a week and coconut oil as moisturiser 

      Love x

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    • Posted

      Ps Debbie please wait to try until your biopsy site has healed 🙏🏻X

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  • Posted

    I think steroid cream (betnovate) has helped reverse some of my fusing and seems to have done it quite quickly, no idea how it has because, like you, I felt it was all one and 'healed'. My GP has now said to stop steroid for a month. I also use borax by swabbing it on which relieves irritation and is soothing but I don't know how much this has helped with the unfusing.

    I am also not as stressed as I was when LS was diagnosed (my mother was very ill) and I really believe this has helped me improve. 

    Good luck, keep faith! 

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    • Posted

      Thanks. 

      I wish I could find/see pictures of other women's fusing and whether mine is hopefull of unfusing or not.  I have nothing to compare to except the pictures in google that show women completely shut. I want to see before and after pictures from baking soda baths, borax, steroid cream. I'm worried I left this too long and I'm too far gone. 

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  • Posted

    You can try baking soda baths and Emuaid to see if they help. I've been on Estrace cream now and the fusing has gotten better. My architecture is somewhat better too, but it will never be 100% normal. Borax gave me an allergy reaction, so that doesn't work for me. Emuaid First Aid cream is very soothing. Best wishes. I have not had any flare ups since I started using Clobetasol twice a week for the past 6 months. I hope this cheers you up. smile

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  • Posted

    MapleSyrup - I agree it's difficult knowing how bad your fusing is compared to others. I think Alistar's advice of taking photos is a good idea although it's difficult to do, but that way you can see if there are tiny improvements. We all know LS can't be cured completely unless you are very young and grow out of it, but I now realise that all these remedies can improve things and keep it at bay somewhat, which I guess is the best we can hope for. Someone on here called all these creams and potions our 'arsenal' and that seems a very accurate description.

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    • Posted

      If I am supposed to put clob  ointment on at night, how do I prevent fusing (it's so dry), can I put Vaseline on after the clob? 

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    • Posted

      MapleSyrup: I was told to put moisturizers on before steroid in case you smear the steroid around too much. However, vaseline is a barrier so probably put steroid on by itself?
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    • Posted

      I think - from memory - we should put on the clob, rubbing it in for a minute, and then wait a good 20 minutes before applying any moisturiser.  But I think the clob ointment itself adds moisture, so I use the clob at night and moisturiser in the day.  Best wishes.
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  • Posted

    My doc asked if I  wanted him to separate the fused labia minor/clitoris

    He said even with the Anesthetic it would be uncomfortable. I asked if it was detrimental to my health to leave  it alone,he said no so I am leaving it fused. I just use coconut oil for moisture. Never have use the Clob.

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    • Posted

      Lizzie I am curious to know why you have never used clob? In my minimal experience steroid has helped to unfuse me. I realize this might revert and fuse again but I was relieved to see it work in this way.  - Sarb
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