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Labia Minora Shrinking!!

Posted , 26 users are following.

Nettie62
Nettie62

Hi Ladies

I have never used clob and have managed my itching, soreness and lesions with natural things. Olive oil or coconut oil to keep things moist and a little dab of tea tree directly onto the itch which for me is at the top of my left labia majora just on the inside edge. This is where my white patches are plus a few slightly raised what I think must be hair follicle spots. ( waiting for a dermatologist ref to come through re this). What is concerning me is that in the last couple of months my labia Minora has noticeably shrunk and my clit has also shrunk! I have no fusing and can still have sex with no pain. ( long may this continue). Does clob prevent shrinkage or will it happen regardless. I was diagnosed 2 years ago. Maybe I've been lucky up to now and LS is starting to enforce her true colours on me now. I don't want to use clob but if this is a preventative measure then perhaps I should. I don't have any LS symptoms other than shrinkage at present other than on my labia majora. I am 55yrs so maybe this could also be atrophy from menopause? Any feedback would be appreciated. Thank ladies.

1 like, 134 replies

134 Replies

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  • jody4151
    jody4151 Nettie62

    Posted

    I have been using clobetasol for years and though it does relieve the itching & burning it does not prevent shrinkage.  And it is so expensive!!!!!   Wish they could come up with something better & reasonably priced.

     

    • karen23320
      karen23320 jody4151

      Posted

      I agree! It’s been 10 weeks since my diagnosis, my Dr didn’t follow up after 6 biopsy sutes all tested positive for LS for 6 weeks! So I used Emuaid Maxx and Emuaid priginal, sat in baking soda bath, changed diet, added supplements and at 6 weejs finally gotva prescription for Clob. I didnt want to use itas I had gotten rid of pain and itching homepathically, but at 8 weeks I moticed white patches were still there, rt labia was almist gome and clitoris was getting smaller. 

      I started ising the Clob 2x a day ( still no itching or pain) but it hasn’t done anything! 

      Now I am 10 weeks in and my clitoris is GONE! Did it retract? Become hooded( covered in thickened tissue), disintegrate? I don’t know, but little to no feeling there. I am 47 and have always had a healthy sex life and now its gone? No libido either- due to LS diagnosis, negative feelings about how my body looks or no testosterone in body ( results of blood-work??) I don’t know , but this sucks! Hoping testosterone cream will get clit to re- emerge??? One can only hope! What’s the point of using Clob if it’s not going to do anything positive? 

    • Guppy007
      Guppy007 karen23320

      Posted

      Hi Karen, the clob is good for getting rid of the white plaques of skin and for pain in the clitoris, but that's about it in my view.  It might take a few weeks to get rid of the white plaques of skin.  My clit doesn't have the same sensitivity either, its just not as sensitive as it once was.  Its hurting today because incredible as it may seem I had butternut squash last night and my body had decided it doesn't like it anymore.  

    • karen23320
      karen23320 Guppy007

      Posted

      I can’t  eat Butternut squash anymore due to the high oxalate content. No yams, potatoes, Spinach, chocolate, whole grains, nuts, seeds.... the list goes on and on! 🙄🙄🙄

      My clit has hardly any feeling at all, and has just disappeared. I am very familiar with how it feels and where it is and I had to really work to find any  part of it and to get any kind of response, my husband is going to get very frustrated! Our 25th Wedding  Anniversary is next week and we are going away, and I’m afraid that aspect of it may be a bomb😢

       It felt like it had a hard part next to it and I picked at it ( think it was an adhesion), I got  it to “ let go” and that part felt raw afterward so I put some Clob on it. 

      Ugh!!!!!

    • Guppy007
      Guppy007 karen23320

      Posted

      Hi Karen, it sounds like you might have unfused a part of it.  I am sure that you are aware that if things get really bad it is possible to have surgery to basically get your clit back...Gosh, that sounds awful!  

      Have a nice trip.

    • Nancy_K_B
      Nancy_K_B Guppy007

      Posted

      OH! my gosh, Guppy/Katie.... I LOVE butternut squash, esp soup. and we have four or more ripening on the vine as we speak. argh. I' check that out in a few weeks - tentatively. smiles. Thanks for the heads up.

      I have another funny one.. has anyone gotten a reaction from peanuts - when they haven't ever known themselves to have sensitivity to them before?  A few days ago I was int he mood for an old "comfort food/treat" peanut M&Ms - yeah I know I know - 

      well the next morning I was wondering why I had had a bit of an itchy night. and couldn't figure it out until I dowsed everything I had eaten the last 24 hours... I checked the milk chocolate in the M& M's nope. the little bit of sugar? nope.. the peanuts YES! well dang that was a surprise.   So is this a known antagonist for LS?  thanks. 

       

    • Guppy007
      Guppy007 Nancy_K_B

      Posted

      Hi Nancy, interesting! I discovered recently that I can't eat peanuts too.  What happened to me was that I had a small amount of peanut butter on a crispbread and then later in the afternoon I had a terrible pain in my hand, arthritic pain!! So no more nuts for me.

      Karen is correct re the butternut squash because I had forgotten I had also had it the day before in a stir fry and so my 'bucket' was full.  I didn't make the connection at first so thanks Karen Lol! 

      Who knew veggies can give you a sore vagina Lol!

    • Guppy007
      Guppy007 karen23320

      Posted

      Hi Karen, just one thing and you may already know this.  It is important not to cut out everything at once from your diet as remember you may not react to things that others may react to.  Take it easy and eliminate things slowly. 

      I still have a bit of chocolate and I eat potatoes and have recently started having the odd glass of wine, but I feel like I can do this sometimes. 

      If you try too hard too quickly you will make yourself miserable and depressed.

    • karen23320
      karen23320 Nancy_K_B

      Posted

      Since I am following a low oxalate diet that means no nuts, seeds or chocolate. I had 3 peanut M&M’s about a month ago and same thing- it hy the next day- not daring to try again! 

    • karen23320
      karen23320 Guppy007

      Posted

      Hi Guppy- I have been really good about my diet. I know there are probably trace amts of sugar ( naturally occurring) in some of the foods I eat, and I am trying to keep my oxaltes at the recommended 50. When I look back at my previous eating habits; between my 21- grain bread. Spinach 2x a day, brown rice, almonds for my snack, 1:2 pint of raspberries with my all natural multi- grain cereal for breakfast and  sweet potatoes with dinner I was eating about 1000 oxalates a day! It’s no wonder I had gallstones and 2 rounds of kidney stones! Who knew that all of the healthy foods I was eating were bad for me?! 

      I had popcorn at the movies last night  ( alas no milk duds) because I knew I had not eaten any oxalates at breakfast or lunch. Then had a thin crust pizza with basil, blistered tomatoes, Asiago, Riccota and mushrooms, drizzled with balsamic since I had some left over! Yum! 

    • Guppy007
      Guppy007 karen23320

      Posted

      Hi Karen, I felt like the healthier I ate the sicker I became.  I was juicing a lot and I went downhill after that..but I didn't know I had a serious salicylate problem at the time. 

      It does appear that you were having an awful lot of oxalates., but it sounds like your on the right track now.  I am sure I read something ages ago about Oxalates and Vulvodynia having a strong connection.

      I read recently that I can have popcorn as it is low in Histamines, histamines are one of my major problems and so I have ordered some on Amazon, apparently, they do blue popcorn eek   

      Your dinner sounds amazing.  I am suffering from my dinner of last night. My husband had been away skiing and I wanted to prepare a nice special meal and so I made homemade prawn curry. I had a glass of wine and then he presented me with some chocolates!   My body doesn't really like chocolate, as there is much in it that I shouldn't have.  Alas, I was awake most of the night and my arthritis is playing up!  So today I will go back to eating cleanly.

    • Nancy_K_B
      Nancy_K_B karen23320

      Posted

      oh wow, Karen! thanks for sharing - but only 3 peanut m&M's caused all that? argh... but have you tested each of the other real NUTS? just to be sure? ya all know that a peanut is not a nut... but a legume right?  so is that what we are responding to? 

      I love nuts and I have walnuts almost everyday, or almonds.  don't THINK they are causing trouble.

      YOu all have given me ideas to become vegan and the hardest part is learning to cook with new recipes. fun though!

       anyway, so that means more beans than usual. I do love hummus and have for some years. I'm presuming that garbanzo beans/chickpeas are not causing any probs for me, are they for anyone else?  

       

    • karen23320
      karen23320 Nancy_K_B

      Posted

      All nuts are too high in oxalates for me and a low diet has been shown to help with vulvodynia pain. Most beans are off the table too except for mung beans- which means no more chili! I can hv chickpeas, but mot tahini die to the sesame- all seeds are a no no. I tried gluten- free, but too many forbidden ingredients ( like almond or cashew flour, brown rice flour and buckwheat groats- all no-no’s). BUT , I CAN hv coconut flour, so I bought a 6 lb. bag and hv 4 paleo recipes to tey- Rosemary, Garlic foccacia bread, pumpkin bagels, Paleo english muffin and sandwich bread. I will let you know how they are! 
  • janie27576
    janie27576 Nettie62

    Posted

    hi Nettie and ladies, well i just got back from a 4 day vkay at the beach, was so scared i was gonna be sick,took all  my stuff which is the Aloe, turmeric oil, spray bottle with the whole box of baking soda, the emuaid max and the bottle of epson salt with coconut oil....geez but but i was so happy that my V behaved herself...yey!!!!! ....I just used a ALOE/MIX AND THE EMUAID MAX AT NIGHT....so i got to relax and not be so uptight and had fun with all my family . but i have another problem...my right breast is hurting of and on on my nipple so i have an appt. with my DR. tomorrow..had a biopsy done on that breast last year and it was benign..so i hope all will be ok...just wanted to tell you all..hope everybody is doing ok ...Janie...also i am gonna try again to see if that Dr. will give me a refferal to a vulva specilist so i dont have to fork 250.00 to 300.00 for the visit ....i did have a beer...haha and brisket and potatoe salad jalapenos, chips with salsa , tacos...i guess my vjay was asleep...
    • Guppy007
      Guppy007 janie27576

      Posted

      "i guess my vjay was asleep" LOL!! cheesygrin

      Glad you had a great time. 

      Let us know how you get on re the biopsy...hope all goes well.

    • janie27576
      janie27576 Guppy007

      Posted

      hi guppy, haha yes that dam vjay...haha..thank you and yes i will let you know how that goes. janie
    • janie27576
      janie27576

      Posted

      hi Guppy and ladies, sorry for being late on my report on my breast..Dr. said all looked good and wants to check me in 6 months. so that was good news so i dont know why my breast hurts it comes and goes like when youre on your period and they are tender...i am well past that at 66, now i am wainting to see a vulva specialist next month and see what she tells me ..since the idiots i have seen dont know and dont care..but i have been using the aloe/mix that Nancy here told us and that seems to help me and plus the Emuaid Max.. just that i do get depressed sometimes and i pick myself back up..what else can we do right?   are you taking all the supplements that Nancy has posted on here? I am trying to get all of them but not quiet there ..Janie
    • Guppy007
      Guppy007 janie27576

      Posted

      Hi Janie, that is excellent news re your biopsy.  It is good that you are getting to see a vulva specialist and hopefully they should know more than the doctors that you have seen recently. 

      Maybe some of that depression is a worry about your breast?  If they have given you the all clear then you should really try to put that out of your mind if you can as worrying never changes anything.

      I take a lot of supplements and shove them all down at the same time in the morning with my breakfast, I'm not sure that's the best way to do it but if I dont take them all at once I dont take them during the day, I forget.

       

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