Labial fusion - change in urinary tract
Posted , 7 users are following.
Hi all - I am new to this blog and have partial labial fusion (upper area). I am very anxious as this has recently seemed to cover the exit point for my urine to a point about 5mm above the entrance to my vagina. This was following an episode where my my clitoral hood (which has almost closed ) became infected owing to a couple of lumps about the size of a petit pois peas lodged behind the hood. I have only dicovered this development in the last few days as there was no pain or irritation prior to the flare - up. I have serious concerns about the rapid progression recently and need to see a specialist doctor fast! My GP is very supportive but is not an expert and acknowledges it would be beyond a standard Gyne doc so is happy to refer my to a doctor of my choice. Any suggestions? I am in the UK (SE)
0 likes, 7 replies
kathleen65757 sugarplumb
Posted
I fear not being able to wee as well so I put the Advantan fatty ointment on that area every night to ward off such an event as well as th clitoris area.
You need someone who is dealing with all the time so I hope someone who lives near you can advise.
Otherwise ring the hospitals until you find the right place to deal with this for you.
Morrell1951 sugarplumb
Posted
You're in a major flare – it doesn't mean it's going to stay this bad. You haven't said you've actually had a diagnosis of LS, although I'd bet the farm. Glad you found us. It's huge to be able to share gory details with each other.
Do watch Dr. Goldstein's presentation, linked in the second 'pinned' topic at the top of this forum. LS 101.
Barking sugarplumb
Posted
sugarplumb Barking
Posted
Have any of you had any experience with Jenny Powell Department of Dermatology, Hampshire Hospitals foundation Trust or Sue Cooper, Department of Dermatology, Oxford Radcliffe NHS Trust and University of Oxford, Churchill Hospital, Oxford, UK? They were contributers to a European Forum and Sue Cooper also runs a joint Gynaeoncology and Dermatology clinic although she is further away.
I am pretty convinced that I will need surgery so I want to select the most experienced in this field. Have any of you had surgery?
nannylin sugarplumb
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j02359 sugarplumb
Posted
hanny32508 sugarplumb
Posted
However, I can advise you on a few things, since I had eventually only a small pin hole left to pee. First of all - stay away from cutting as a procedure, rather ask for dilation. Second - are you rinsing with baking soda water after every bathroom visit? After which to apply coconut oil. And are you taking baking soda plus tea tree oil baths? This has helped me tremendously.
Also - look at what you're eating. Best to cut out sugar, alcohol, perhaps gluten. Some dairy. Just check out you diet.
Furthermore, don't think these things will help overnight. You will have to be diligent with this. Any further questions - don't hesitate to ask.