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Labial fusion - change in urinary tract

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sugarplumb
sugarplumb

Hi all - I am new to this blog and have partial labial fusion (upper area). I am very anxious as this has recently seemed to cover the exit point for my urine to a point about 5mm above the entrance to my vagina. This was following an episode where my my clitoral hood (which has almost closed ) became infected owing to a couple of lumps about the size of a petit pois peas lodged behind the hood. I have only dicovered this development in the last few days as there was no pain or irritation prior to the flare - up. I have serious concerns about the rapid progression recently and need to see a specialist doctor fast! My GP is very supportive but is not an expert and acknowledges it would be beyond a standard Gyne doc so is happy to refer my to a doctor of my choice.  Any suggestions? I am in the UK (SE)

 

0 likes, 7 replies

7 Replies

  • kathleen65757
    kathleen65757 sugarplumb

    Posted

    I live in Australia and attend a clinic at a women's hospital where I am seen by both a dermotologist and a gynaecologist. Something like this would be ideal. 

    I fear not being able to wee as well so I put the Advantan fatty ointment on that area every night to ward off such an event as well as th clitoris area.

    You need someone who is dealing with all the time so I hope someone who lives near you can advise.

    Otherwise ring the hospitals until you find the right place to deal with this for you.

     

  • Morrell1951
    Morrell1951 sugarplumb

    Posted

    Sugar, it sounds exactly like the pseudocystic smegma abcess I got under my almost closed clitoral hood. I let it get huge and inflamed and even drained it before going in to emergency. At least this finally got me diagnosed with LS after 40 years. It's not impossible that a gynaecolgist or a vulvar dermatologist would use a series of dilators to open things up again. Hanny's a regular here and may weigh in on the subject if she's around. LS can move fast, but it can also slow down once we get proper ointment, treat it well, lower our stress and go easy on the sugar – for many months.

    You're in a major flare – it doesn't mean it's going to stay this bad. You haven't said you've actually had a diagnosis of LS, although I'd bet the farm. Glad you found us. It's huge to be able to share gory details with each other.

    Do watch Dr. Goldstein's presentation, linked in the second 'pinned' topic at the top of this forum. LS 101.

  • Barking
    Barking sugarplumb

    Posted

    Hi there. Whereabouts do you live? I too am in SE England and have found the Dermatology department of Basildon Hospital to be excellent. There are a couple of LS specialists whom I feel very lucky to have found. I don't know if I am allowed to name them on this site but a call to the department may help or ask your doctor to refer you. If the location is not helpful then as Kathleen has suggested, try hospitals near you. I so wish you good luck as it is a horrible condition and you not only need treatment but reassurance as well.
    • sugarplumb
      sugarplumb Barking

      Posted

      So glad I found this site and overwhelmed with the responses! Thank you all so much!! Yes I had LS daignosed at 24 - 32 yrs ago. The latest development has 'sneaked up on me' without me noticing as I have had little trouble with it for so long! It is really helpful to know there are accessable doctors on the nhs and have been trying to decide which one I would like to be referred to.

      Have any of you had any experience with Jenny Powell Department of Dermatology, Hampshire Hospitals foundation Trust or Sue Cooper,  Department of Dermatology, Oxford Radcliffe NHS Trust and University of Oxford, Churchill Hospital, Oxford, UK? They were contributers to a European Forum and Sue Cooper also runs a joint Gynaeoncology and Dermatology clinic although she is further away.

      I am pretty convinced that I will need surgery so I want to select the most experienced in this field. Have any of you had surgery?

       

  • nannylin
    nannylin sugarplumb

    Posted

    Hi sorry to hear that. I had an infection last year in the same place, very painful but it got my doctor to refer me to a dermatologist at whipps cross hospital who specialises in vulvar health. You could ask to be referred to her ( I think she has private practice too) if you are near enough. Lovely lady, her name is Karen Gibbons. Good luck
  • j02359
    j02359 sugarplumb

    Posted

    Google Professor Wendy Reid.  Every best wish.
  • hanny32508
    hanny32508 sugarplumb

    Posted

    You live in the UK I understand, so it will be hard to recommend a doctor, living in Canada.

    However, I can advise you on a few things, since I had eventually only a small pin hole left to pee.  First of all - stay away from cutting as a procedure, rather ask for dilation.  Second - are you rinsing with baking soda water after every bathroom visit? After which to apply coconut oil. And are you taking baking soda plus tea tree oil baths?  This has helped me tremendously.  

    Also - look at what you're eating.  Best to cut out sugar, alcohol, perhaps gluten. Some dairy. Just check out you diet. 

    Furthermore, don't think these things will help overnight.  You will have to be diligent with this.  Any further questions - don't hesitate to ask.

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