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Labyrinthitis sufferer. Symptoms include severe vertigo and dizziness.
I guess I just want to feel I'm not alone in this. I'm in my 7th week of GP confirmed Labyrinthitis in my left ear. Woke up one morning with the room spinning so I visited the GP next day who said it could be Labrynthitis, but my symptoms subsided for rest of the day so I thought short lived ear inflammation. No such luck, next day was back again. I self diagnosed Labyrinthtis with the help of a ENT friend who told me to not take any medication and try do normal stuff as much as I could.
So for the last 6 and a half weeks (with vertigo, dizziness, thick spaced out feeling but thankfully no sickness) I've been randomly taking medication when it got too bad and have tried to go to work (I'm a hairdresser so it's really not easy to do with dizziness) but did feel I saw improvement with being up and about rather than being in bed.
Returned to GP last week and he properly diagnosed me with a Nystagmus test on my eye confirming the virus was still active, he also said i should keep taking the drugs (prochlorperazine) to ease the symptoms, but i feel like i've been worse since taking them consistently. I was having a fair amount of respite from the symptoms towards the end of the day when I'd been up and about most of the day, and now I'm just hitting the point of frustration feeling like I'm never gonna feel normal again, like i take 5 steps forward and have some ok days then 4 steps back when i have a bad day. Today is a bad day and yet again I'm canceling my life because I feel too dizzy to even function normally.
This whole thing is just really getting me down and i keep being hit with wanting to cry all the time because of it. I'm normally such an active person and due to go on a 2 wk holiday to Canada in 3 weeks. I already missed one trip because of feeling crap.
I know 7 weeks is a small amount of time compared to some but my tolerance is shot to pieces and just wanted to talk to people in same situation.
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