Labyrinthitis - "brain shifts"??

Posted , 76 users are following.

Okay this is week 5, my first ever experience of vestibular problems. It started in horrendous fashion - I was swimming om my back and suddenly thought I was having a stroke. The most frightening experience of my life, and quite frankly I'm still traumatised by it. Still haven't managed to summon up the courage to go swimming! After an hour or so of assistance at the poolside, my OH picked me up and I went off home to bed. It seemed to clear within a couple of hours so I went out shopping!

Next day I woke in a right state. It felt like I'd drunk 3 bottles of wine and had the hangover to go with it all at the same time! Doc gave me Stemetil and told me was either BPPV or lab. After a few days of awfulness, I finally realised I felt better if I moved around more - I suppose the start of the compensation process. I didn't feel I had hearing loss but did have the fullness feeling in both ears. I also felt more comfortable sleeping on my right side, and in fact had a further spinning episode just after I had laid down on my left side, so avoided doing so.

I then wondered if it was BPPV rather than lab and pestered my doc to do the Epley. They didn't do it, had to be referred to physio, six week wait, went private!! Wonderful vestibular physio performed the Dix-Halpike and confirmed I didn't have BPPV and didn't need the Epley. Why on earth my doc couldn't do that I don't know! She gave me lots of advice about the condition and showed me some exercises to aid compensation. Since then I'd felt a lot better, apart from having what I describe as brain or head shifts, and lots of pressure in my head especially when I'm tired.

Sadly, since a few days ago, I appear to now be getting worse again. Have actually had some dizzy spells laying down in bed - they had gone completely and I was feeling practically 100%. Is this what I am to expect now? Does anyone else have the strange head sensations that I described? Could I have Vestibular Neuritis rather than Labyrinthitis? When do I go back to my doc - I already feel that she dreads seeing me - have so much else going wrong at the moment! Could the stress I'm suffering because of my health problems be hampering my recovery? So many questions!! Would love to hear from anyone who's story is similar to mine biggrin. MTIA!

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  • Posted

    Hi

    Yes - all of your symptoms I've had as a result of Botox.

  • Posted

    Hi, my husband was 7 years old when he started to have spells of dizziness, etc. He is now 36 years old and is still fighting this disorder. We live in Texas. He has never been diagnosed with LAB, but has been to every doctor imaginable, including ENT has had MRI's, been on steroids,antibiotics, blood work, allergy testing and still no answers....So he stopped going to doctors since he was not getting any help. About 5 years ago, he started doing his own research. He came across candida yeast overgrowth forums and found that many people with this, had his same symptoms. He began his journey to tackle this with diet. He completely cut out ALL yeast And SUGAR! You would be shocked to realize that almost every food has yeast. This was the hardest thing he had ever done in his life. The first 2 weeks, he felt like he was dieing. His symptoms became worse, but that was to be expected, from what he had read. He stuck to it and by week 6, he was a different person. He felt good for the first time in his life. He stayed on this for about a year and was ecstatic that he had found the cure. Unfortunately, he has strayed from the diet and slowly but surely all of his symptoms are back with a vengeance. He has tried several times to go back on the diet but because it is extremely difficult, and with stress, anxiety, and depression, he has not had the will power to stay on it long enough to reap the results, and therefore falters. Within the last couple of years, the brain fog, spinning, and headaches have been dibilitating. He hasn't gone to the doctor in many years. He has decided to tackle this again, but from all sides. So, he is not only going to start his candida yeast/no sugar diet again, but is also going to doctors to see what they have to offer as well. Of course, that will be a long journey, since our Healthcare system in America SUCKS! But we will give it another shot. Just wondering if anyone else had done any research on candida yeast overgrowth????? Thanks!
  • Posted

    update as I haven't been on here for a while!

    My hearing has deteriorated enough to wear a hearing aid now. Of course it could be age related but I do think the labyrinthitis has been a factor. I am managing well, however and have been to the pub with younger colleagues & great I could hear everything. I do my balance exercises very regularly. I was away in a snowstorm in Austria recently and without the normal visual cues, next day I had an attack...had to go to bed then got up and did all the balance exercises I could think of and it worked, I felt OK again.  Obviously lab will always be there but I'm well enough to cope as long as I do the exercises.  I have certainly been told that the inner ear doesn't work on one side. By the way never be fobbed off. I went to the Dr initially at the beginning of March 2012 but wasn't seen by a consultant til July. My ear was suctioned on three occasions before they could see the bacterial infection. Bacterial infections can be dangerous as they are so near the brain and should have been sorted long before.On a positive note, if you feel well enough do those exercises. I do know however that everyone is a bit different.

    Good luck

  • Posted

    Hi, Has anyone found that taking an anti anxiety/deoressant helped them at all???? 

    I went out drikning about 8 weeks ago and got into bed happy and tipsy, to then feel what i called a brian shift, form then on i was light headed/dizzy for almost two weeks and it jsuut then went away over the space of say 3 to 4 days..... KI then had another drink! so stupid i know, and it all returned but worse, PLUS major anxiety. I did have anxiety the first time during the two weeks bout, BUT i didnt worry too mnuch and when the anxiety went away the feeling light heaededness and dizziness went away too. I do not have any vertigo issues whatsoever, ever so slight fulness in one eart and at night i can hear a very low buzz from my head or ears i dont know, when i close my ears i cannot hear it, so is that tinnitus or not. 

    I paid to see an ENT consultant who did the hallpike nad epley manouvres on me, and he basically told me that i didnt have lab or menieres, but is sending me for MRI, balance tests with a physio and hearing tests.

    SO...... i am now jsut started taking citalopram (Celexa) 10mg two days ago in the hope that this is all anxiety????? time will tell but oh my goodness what a state i have gotten myself into over this lightheadedness/dizziness.

    Oh the only other symptom i ahve is very light head behind the eye pressure and my eyes feels constantly tired no matter how much sleep ive had, i feel drowsy.

    Any comments on this? is it my ears or what?

    Thanks in advance, 

  • Posted

    Hi

    Im really relieved to read your experience as I was diagnosed with a inner ear infection and later BPPV. Ive suffered a dreadful thick head issue ,light sensitivity,blurred vision,dry eyes,headache and vertigo . Ive been suffering with short term memory and concentration problems. My GP seems to think the memory concentration issue isnt a related problem but clearly many people on this forum suffer with it.  After 6 weeks or more Ive been given a specialist referal . Any one else have memory issues related to this problem

    • Posted

      Hi andrew, yes I do very much. My memory is terrible since this. Brain fog no concentration. Completely normal from what ive researched.
  • Posted

    I think I have the same type of thing but I do not understand alot of your abbreviations. What is BPPV or lab? What is physio? What does six week wait went private mean? What is epley? What is dix-halpike? Yeah I can look all that up and i probably will but just reading your story it makes it really hard to understand. Just the opinion of someone who is trying to figure out what the hell is wrong with him. Besides the symptons u mentiones above I also get blurry/double vision. Thanks for sharing either way. Have a nice day and a great holiday season.
  • Posted

    Hi Doug, as you have mentioned the holiday season then I guess you are in the US? I think that's part of the problem, I am referring to UK terms in the main, and to the UK health system!!

    So lab is labyrinthitis, BPPV is a very similar condition that you can certainly google. Six week wait refers to the length of time that I would have to wait to see a physio(therapist) on the NHS (UK free health service) so I paid to see one sooner. Epley (manoeuvre) is a treatment for BPPV and Dix Halpike is a similar test to check which type of vertigo is present.

    Hope that helps all you US folk, and happy holidays indeed!

    • Posted

      Hello. Thanks for clearing that up. Yes I am in USA, New York. I have been dealing with some kind of dizzy head, double vision, ears going in and out kind of thing (hard to explain) for a long time now. I got MRI's and a lot of testing done but nothing yet. Been to ear doc, eye doc, neurologists and no diagnosis. I am getting fed up so I took to the internet to look for myself. I am sure a lot of people probably understood you just fine, i was just saying from my perspective. I am 35 but I look at 25 so I always get "oh you are too young to have any problems" when they say that it makes me think they are not really looking cause they think they won't find anything. My one doc is great but he is an hour drive away and it gets frustrating when they can't tell me how to fix it. Well again thank you, i appreciate you taking the time to clear that up for me. Have a wonderful day!!!
  • Posted

    Hi again Doug. I'm not sure about the double vision and how that might fit with vertigo, but you might want to research Meniere's Disease? Do you mean your ears feel like they're full occasionally? I know ear or vestibular problems cause lots of unp!easant symptoms you might not expect. I have not had double vision but maybe others have?

    Good luck with your tests. I think it's fair to say that if you've not had acute vertigo then you probably can rule out labyrinthitis!!

  • Posted

    Hello everyone

    This is just for information; it is nearly 3 years since I first had this horrible illness of labyrinthitis. I have felt well for a long time now but it did affect my hearing so that I have a moderate hearing loss and now wear hearing aids not great but better than feeling ill and I also know that it does sometimes give people tinnitis. Anyway, I still do my set of balance exercises as suggested by the balance nurse and if I don't do them the old sensations of falling and head feelng full can come back. What I am trying to say is that these exercises are very helpful for me;  I was told that the labyrinth on one side doesn't work at all and the exercises help my brain to adapt so hopefully the exercises can help everyone?

    Maggie 

    • Posted

      Hi maggie, may I ask how long you did the exercises for before they worked?
    • Posted

      Hi Crest, I thik probably 3 or 4 months gradually getting better at them. Then I had a bad turn at the beginning of this year as I had gone skiing (yes!), there was a white-out with no visual cues. I woke up next day feeling dreadful with all the old symptoms, went to bed for an hour, got up and did absolutely all the exercises and it worked, I felt better! I know I need to do them 2 or 3 times a week even now as otherwise i still can feel as if am going to fall on the odd occasion. Hope this is helpful

      Maggie

    • Posted

      Ps One of the exercises the nurse told me to do was to turn round 5 times each way with my eyes shut. I did that and took anhour to recover. After that I just used to turn round twice each way. Now I turn round 3 times and have never bothered with 5!! remember i first had lab nearly 3 years ago and was referred to the balance nurse 6 months after that so I am a way down the road but think it is always there. Good luck!
  • Posted

    I have permanent turning around feeling but i m going to the doctors or hospital again i hope soon.no position of mine makes it better but will try exercises soon. You should avoid swimming because of water though. Sometimes water causes infectin,. I try my best not to get water in my ears from bathing and hairwashing and from wind and cold.
    • Posted

      Hi  I know what you mean about swimming and being concerned about infection but I do go swimming but use'Earol swim tea tree oil, which is a spray acting as a barrier, hopefully.

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