Labyrinthitis - "brain shifts"??
Posted , 76 users are following.
Okay this is week 5, my first ever experience of vestibular problems. It started in horrendous fashion - I was swimming om my back and suddenly thought I was having a stroke. The most frightening experience of my life, and quite frankly I'm still traumatised by it. Still haven't managed to summon up the courage to go swimming! After an hour or so of assistance at the poolside, my OH picked me up and I went off home to bed. It seemed to clear within a couple of hours so I went out shopping!
Next day I woke in a right state. It felt like I'd drunk 3 bottles of wine and had the hangover to go with it all at the same time! Doc gave me Stemetil and told me was either BPPV or lab. After a few days of awfulness, I finally realised I felt better if I moved around more - I suppose the start of the compensation process. I didn't feel I had hearing loss but did have the fullness feeling in both ears. I also felt more comfortable sleeping on my right side, and in fact had a further spinning episode just after I had laid down on my left side, so avoided doing so.
I then wondered if it was BPPV rather than lab and pestered my doc to do the Epley. They didn't do it, had to be referred to physio, six week wait, went private!! Wonderful vestibular physio performed the Dix-Halpike and confirmed I didn't have BPPV and didn't need the Epley. Why on earth my doc couldn't do that I don't know! She gave me lots of advice about the condition and showed me some exercises to aid compensation. Since then I'd felt a lot better, apart from having what I describe as brain or head shifts, and lots of pressure in my head especially when I'm tired.
Sadly, since a few days ago, I appear to now be getting worse again. Have actually had some dizzy spells laying down in bed - they had gone completely and I was feeling practically 100%. Is this what I am to expect now? Does anyone else have the strange head sensations that I described? Could I have Vestibular Neuritis rather than Labyrinthitis? When do I go back to my doc - I already feel that she dreads seeing me - have so much else going wrong at the moment! Could the stress I'm suffering because of my health problems be hampering my recovery? So many questions!! Would love to hear from anyone who's story is similar to mine . MTIA!
7 likes, 134 replies
Codi ~Dragon~
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Yes - all of your symptoms I've had as a result of Botox.
muse1212 ~Dragon~
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maggie34 ~Dragon~
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My hearing has deteriorated enough to wear a hearing aid now. Of course it could be age related but I do think the labyrinthitis has been a factor. I am managing well, however and have been to the pub with younger colleagues & great I could hear everything. I do my balance exercises very regularly. I was away in a snowstorm in Austria recently and without the normal visual cues, next day I had an attack...had to go to bed then got up and did all the balance exercises I could think of and it worked, I felt OK again. Obviously lab will always be there but I'm well enough to cope as long as I do the exercises. I have certainly been told that the inner ear doesn't work on one side. By the way never be fobbed off. I went to the Dr initially at the beginning of March 2012 but wasn't seen by a consultant til July. My ear was suctioned on three occasions before they could see the bacterial infection. Bacterial infections can be dangerous as they are so near the brain and should have been sorted long before.On a positive note, if you feel well enough do those exercises. I do know however that everyone is a bit different.
Good luck
crest ~Dragon~
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I went out drikning about 8 weeks ago and got into bed happy and tipsy, to then feel what i called a brian shift, form then on i was light headed/dizzy for almost two weeks and it jsuut then went away over the space of say 3 to 4 days..... KI then had another drink! so stupid i know, and it all returned but worse, PLUS major anxiety. I did have anxiety the first time during the two weeks bout, BUT i didnt worry too mnuch and when the anxiety went away the feeling light heaededness and dizziness went away too. I do not have any vertigo issues whatsoever, ever so slight fulness in one eart and at night i can hear a very low buzz from my head or ears i dont know, when i close my ears i cannot hear it, so is that tinnitus or not.
I paid to see an ENT consultant who did the hallpike nad epley manouvres on me, and he basically told me that i didnt have lab or menieres, but is sending me for MRI, balance tests with a physio and hearing tests.
SO...... i am now jsut started taking citalopram (Celexa) 10mg two days ago in the hope that this is all anxiety????? time will tell but oh my goodness what a state i have gotten myself into over this lightheadedness/dizziness.
Oh the only other symptom i ahve is very light head behind the eye pressure and my eyes feels constantly tired no matter how much sleep ive had, i feel drowsy.
Any comments on this? is it my ears or what?
Thanks in advance,
andrew16727 ~Dragon~
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Im really relieved to read your experience as I was diagnosed with a inner ear infection and later BPPV. Ive suffered a dreadful thick head issue ,light sensitivity,blurred vision,dry eyes,headache and vertigo . Ive been suffering with short term memory and concentration problems. My GP seems to think the memory concentration issue isnt a related problem but clearly many people on this forum suffer with it. After 6 weeks or more Ive been given a specialist referal . Any one else have memory issues related to this problem
crest andrew16727
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dougsa80 ~Dragon~
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dragon1004 ~Dragon~
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So lab is labyrinthitis, BPPV is a very similar condition that you can certainly google. Six week wait refers to the length of time that I would have to wait to see a physio(therapist) on the NHS (UK free health service) so I paid to see one sooner. Epley (manoeuvre) is a treatment for BPPV and Dix Halpike is a similar test to check which type of vertigo is present.
Hope that helps all you US folk, and happy holidays indeed!
dougsa80 dragon1004
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dragon1004 ~Dragon~
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Good luck with your tests. I think it's fair to say that if you've not had acute vertigo then you probably can rule out labyrinthitis!!
maggie34 ~Dragon~
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This is just for information; it is nearly 3 years since I first had this horrible illness of labyrinthitis. I have felt well for a long time now but it did affect my hearing so that I have a moderate hearing loss and now wear hearing aids not great but better than feeling ill and I also know that it does sometimes give people tinnitis. Anyway, I still do my set of balance exercises as suggested by the balance nurse and if I don't do them the old sensations of falling and head feelng full can come back. What I am trying to say is that these exercises are very helpful for me; I was told that the labyrinth on one side doesn't work at all and the exercises help my brain to adapt so hopefully the exercises can help everyone?
Maggie
crest maggie34
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maggie34 crest
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Maggie
maggie34 crest
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Butterflyhug2 ~Dragon~
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maggie34 Butterflyhug2
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