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labyrinthitis? help!

Posted , 10 users are following.

teri94
teri94

Hello!

I've been suffering with dizziness and a weird sensation in my head for 6 months now. I've been to the doctors and only today been reffered to Vestibular Rehab. I still don't really have a proper diagnosis from the doctors it feels like nobody really understands what im going through which is really frustrating and upsetting. I feel badly when im moving my head about but even when i'm just sat down i can feel awful too. Its such a strange feeling, i never feel like i'm going to fall over but my head doesnt feel right. 

I'm 20 and studying physiotherapy at university and finding it so hard to keep up with my studies and actually cope with my life. I have good and bad days mostly bad. I have anxiety planning my day ahead because i'm scared of how i'm going to feel. Its ruining my life and after a recent breakup with my boyfriend im finding it really difficult to deal with my emotions aswell because of how dizzy i feel. I'm a really active young woman, i'm a powerlifter and workout nearly 4 times a week which is a real struggle sometimes as the dizziness will hit me when im standing up from laying on benches etc. The gym is my only outlet from it all and i feel like that is being taken from me too as it sometimes makes me feel worse. I just want to feel normal and have my life back.

My doctor has prescribed me betahistine which haven't helped yet but ive only been taking them for a week so hopefully soon ill see some changes. I've read alot about labyrinthtis as my mum occasionally suffers with it too. Does this sound like labyrinthitis? The docs thought i was anemic but my blood tests all came back fine. 

If anyone has any advice or support to give me it would be much appreciated. I feel very alone and cant see any light at the end of the tunnel. 

Thanks

Teri smile

1 like, 27 replies

27 Replies

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  • wendy93789
    wendy93789 teri94

    Posted

    I think a good healthy diet plenty of rest and exercise forget the boyfriend there are plenty more fish in the sea you are so young start enjoying yourself, deal with the symptoms you have when you get them speak to your GP again perhaps some other medication would help.
  • paula59
    paula59 teri94

    Posted

    Hi Teri - dont freak out, Im sure its nothing serious, although very serious to us.  Its just best to get past the first stage which is the scan and then move onto the next one.  I used to get vertigo from time to time and the betahistine always sorted it out.  I hated it and thought I would sooner have a broken leg.  It only ever lasted a few days.  When this started and it lasted one week after another I couldnt believe it.  I think the first year was the most stressful.  Thats when I had the two panic attacks.  I lost my best friend as she didnt believe there was anything wrong with me as there was nothing to see.  I had to give up going to dancing classes with her and she thought it was because I didnt want to go, but it wasnt.  I would love to go if only I could.  She said she had never heard of anyone being dizzy before.  Then after the diagnosis, I sort of began to get resigned to it.  Now Im battling with my weight because of the lack of jiving.  So I just concentrate on getting that sorted.  Had a better day than normal today and when Im like that I take advantage and rush off shopping.  I had so many aborted shopping attempts in the first year when I couldnt get to the shops or would just walk in and the lights were horrendous and I had to leave immediately.  So I can tell its better than then.  I used to spend every weekend in bed.  Its a bizarre thing but very common.  Try not to worry, yours might just go but best to get a scan then you can alleviate that bit.  xx
  • brenda77455
    brenda77455 teri94

    Posted

    Sorry to hear you are having such an awful time Teri.  This should be a great time for you.  I only what I've read on line and those who have had the therapy seem to really rate it.  We don't value our health until we are poorly do we.  Have you ever suffered from  migraine?  I have been a life-long sufferer and I that it can cause many strange sensations which are hard for others to understand.

    I think we all must be patient who have this weird stuff as it seems it takes time to resolve.  But don't lose heart Teri,try to keep positive. You are young, strong and fit and this can only be to your advantage!  Hope you have a good weekend.

    B. x

  • rocksolid
    rocksolid teri94

    Posted

    I know how everybody feels. In 4 yrs I have been to ever doctor and I was told over and over that I am depressed. The pills they gave me made me worse. I had an inner ear test and was told it was that. I went for vestibular therapy for 6 months and the therapist said I should be better by now. I had my test double checked and they said I don't have a an inner ear issue after all. I thought I had TMJ and a dentist wanted to take out my remaining wisdom teeth. I think the problem is the neck is over looked and most doctors don't consider the neck. I was even told by a doctor that he is positive that my neck is not the cause for being dizzy. It sucks that it took this long but I am happy that I think I have the answer and I hope it is the answer for all of you as well. Never give up hope and nevr let somebody or a doctor tell you you are crazy.
  • jrbball7
    jrbball7 teri94

    Posted

    Teri,

    I know this is an old post but I find my situation to be alot like yours. I have been suffereing from dizziness for about 3 months now and I think ive narrowed it down to possible neck issues as it is always sore and tired or possibly an inner ear issue. I am an avid weight lifter and would go 4 o 5 times a week but now I find it difficult to even go twice a week. All these problems have put a great toll on me mentally with all the anxiety and stress and it makes me feel tired all day long and I just feel like sitting in the house and doing nothing; I have missed out on trips, seeing friends, and doing fun things. I understand how horrible it is to deal with this. My description of my dizziness sounds pretty much like yours, I have no spinning. My head just does not feel right and its very hard to explain these sensations to my doctors because I dont even understand what Im feeling. The best I can describe it as is it feels like Im constantly driving on a winding road, almost like motion sickness. Anyways just thought I share my 2 cents and hope after all this time you have found relief/cure by now.

  • rocksolid
    rocksolid teri94

    Posted

     I looked up SCM muscle issues and that seems to be the problem. I went to an ENT and they did a VEMP test and my left side did not respond well. The ENT said it is eaither the middle ear or my neck muscles that is the issue and she thought it was the neck. I am going to a  Osteopath doctor to see if he can help.
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