Labyrinthitis/ Vestibular Neuritis...Please Help

You symptoms and mine are very, very simular. I have been going through the exact symptoms now for weeks (not vertigo),, but dizziness, anxiety attacks, left ear feeling full and heavy and the constant feeling as if I am going to faint.

I have been to my GP, did CT Scan, took meds for sinus inffection and also the ENT Specialist. All results came back normal.

What help me a little was to reseach Vestubular Disorder and I also did the exercises on YouTube along with Yoga. With these the dizziness has subsided tremendously. I still feel off on some days while some days are great.

I do hope your ENT visit will give you some answers, I am still seraching.

Don't know if you figured anything out yet but sounds like SSCD! I had it also. Most ent doctors don't even know about it. Study it and have a high resolution ct scan

Hey shishir....THANK YOU

I absolutely cannot believe that I've found someone who has identical symptoms as me. Thank you, because now I know I am not going crazy!

I'm over 2 years now with these debilitating affects, many doctors and tests later, I have been diagnosed with BPPV. I see a vestibular PT who maneuvers my head and I usually will notice instantly if it's taken affect.

My questions for you, how are you now? I've read the thread and wonder what this is still doing or how it is still affecting you now? I'm reaching out, no one seems to understand, I have a large family/household who is suffering from my inability to get out of bed for more than 5 minutes somedays.......

Have you been able to find any improvement recently? Also, out of curiosity, did you notice any symptoms that were worse when your eyes were closed?

Sry for necroposting, but does anyone know if shishir recovered fully? 

-or anyone in this thread for that matter? My hope is when someone disappears that means they recovered and moved on. 

I wonder if you are still checking on replies to to this as it's been a year since you desperately reached out to try to make sense out of this horrific disorder OR disease. I feel terrible! I AM the unfortunate expert on what you went through!

I am extremely curious about how this is affecting you today or if at all.

I am going to post my reply anyway in case you do, in fact, still check the comments OR someone else has this going on and they stumble upon it looking for answers themselves.

I grew up up getting very frequent ear, sinus and tonsil infections. The facts that I recall (on more than one occasion) waking up at the age of 7,8,9 years with dried blood on my pillow, (not just a little) and had to have my first ear surgery at the age of 8, that being my petrified mother continually putting the specialist OFF to hope for a miracle instead, is why I wasn't much younger.

My hearing was already damaged by the constant back up of infection in the middle and inner ear laying on the 3 tiny bones inside and basically eroding them!

I experienced the popping in and out, dizziness, heaviness, etc. this entire time (usually worsened by cold weather and getting water in them-I HAD to use top of the line ear plugs while swimming and bathing) I nearly went crazy! I hated that feeling of my voice being inside my head.

I was sick a LOT until I turned 17. I had a high fever and sore throat. I laid in bed for several days just fighting it off as best I could with the large number of family members we have taking turns caring for me.

I got better and cannot recall having any problems beyond that I was already used to with the popping, occasional dizziness, sore throat and low grade fever and ear pain.

Then one day when I was pregnant with my second child, and in the summer months, I got hit with a bout of vertigo that warranted an ER visit. I have NEVER been SO frightened in ALL MY life! I was in a panic attack like NO other! Had someone pointed a gun in my face and threatened to KILL me RIGHT there on the spot, I would have begged them to get it over with at that point.

I received a shot (100 mg) of phenergan to stop the dry heaving but I was pregnant, therefore, I had no options for treatment.

I was SO distraught! Distraught, horrified and depressed to the point that I just wanted to DIE! This is NOT how a woman who's expecting child is supposed to feel. On top of that, in my 7th month into the pregnancy, I was hit with the news that my 26 year old brother had 3 months months to live (cancer), my husband had lost his job and was having extramarital affairs!

Anyone reading this that feels like I am telling a "story" is correct- I am actually writing a book on perseverance and you are getting a small preview of the content.

It's ALL 100% true! No link or mention of the books title or release date will be listed here. I am not trying to be a spammer.

I made it through these atrocities by the grace of God! I eventually went completely deaf in my right ear and opted for surgery once again. The doctors performed an occiculoplasty to try and piece together the remnants of bones that weren't completely devoured by infection and lo and behold, I could hear again! I had no major problems for about 2-3 years then it hit me again! The vertigo attacks literally threw me to the floor, I couldn't focus my eyes! My eyes were literally bouncing back and forth in my head. I was SO SICK! The vomiting was immediate and violent! The only thing I can even try to compare the feeling to is that of a person who never drinks alcohol to them downing a fifth of bourbon.

I was diagnosed with having Meniere's disease and prescribed meclazine, which helps motion sickness. This helped the attacks to be less frequent and less intense.

I lost all hearing AGAIN in my right ear and have moderate hearing loss in the left one.

One summer day, I went to pay my rent to a family member we rented from, my mother's aunt Georgia was having a "prayer group" session with her brothers and church leaders. I apologized for the interruption and tried to leave hurriedly, I was embarrassed to have interrupted God's time. But Aunt Georgia insisted that I come inside and meet some people. I obliged and she went on telling the elders of the church about my ear problems! More embarrassing. They offered to pray in a circle, we all held hands and bowed our heads to pray. Afterwards, Aunt Georgia's brother, a preacher, gave me 4 little square shaped pieces of white cloth. He said they were blessed and anointed with holy oil. He'd given me one for each of my immediate family members. Then he held my head and touched my ears while he prayed again for healing.

I thanked the group very much and left.

That night, my husband (now ex husband) had gotten another job and was trying to make amends for the lying and cheating in the past, was getting ready to leave for work when he stopped to ask me if I was OK, was I feeling the least bit "woozy" because he would not leave me alone if so. Especially not with a 5 year old and 2 year old. I said no. My parents lived right next door so I reassured him I'd be ok.

To my utter SHOCK, less than half an hour later- yep! I hit the floor. My daughter, the youngest, was thankfully napping. I crawled down the hallway on all 4's, trying to reach the bathroom before projectile vomiting ensued! I made it to the back door and threw up so violently that I truly felt as if my eyeballs were going to pop out of their sockets! My precious son, who was and still is, extremely intelligent and mature for his age, in such a grown up manner, began to ask what he could do *(you have to realize that this was not new to him, he'd witnessed this happening to me more times than I care to remember). In my panic, I knew that I had two small children in the house that were as good as "unsupervised"! My panic began to get incessantly worse. I mustered up a way to stop and think quickly about what I should do, but knew nothing COULD be done to stop it..my son kept trying to get my answer when I remembered those prayer cloths in my wallet. I told my son, as I sat on the floor in the hallway with my back against the wall, legs drawn up to my chest, head lying on my knees, "Go get Mommy's wallet son-hurry! Then I want you to run straight to Mamaw and Papaw's and get help in case sissy wakes up." I shoved one of the little square shaped cloths into my outter ear and prayed like I never prayed for MYSELF! I had prayed like this for others..but never for myself. I asked God to end that attack so I could care for my children. That attack vanished FASTER than ANY other I'd had!

I swear it was a REAL true miracle!! I cried tears of joy and thanked God over and over. I have not had a severe attack to this day! That was 18 years ago. I have tinnitus and extensive hearing loss but the vertigo ended that day. I have had a 2-3 second threat that was gone as quickly as it appeared. God's reminding me to keep being grateful in spite of the rest of the issues. And I AM! I HATE to know that there are so many more people facing this problem and you never hear about it being a major problem with solutions because it gets lost in the cracks somewhere! I pray that your problem has become tolerable at least and vanished at BEST! Good luck.