lack of information
Posted , 7 users are following.
I had my bladder repair just under 3 weeks ago and found these weeks to be a lot worse than when I had a repair 5 years ago. That was done with stitches,this has been a mesh repair. I think the shock of the op and being discharged too early,I think, has added to worry. I still feel smelly due to discharge or blood and worry when I open my bowels ( never been constipated before!) Felt really low and tearful this time as well. BUT...I have felt much better for the last 2 days and feel more positive...I feel for everyone on here. We really should be given more info when we leave hospital...NHS take notice!
1 like, 38 replies
phyl_40063 eve33308
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You are so right there is not enough after support or realistic advice, there are such a wide range of different experiences and variations on surgery, even the leaflets are very general (a narrow window of what is the norm ) . Everyone's health and ability to heal at different rates. It is so good to have this site where we can compare experiences, it allows us to see what is to some extent a normal experience and what might be something to worry about. Phyl xx
eve33308 phyl_40063
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Jan999 eve33308
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eve33308 Jan999
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Jan999 eve33308
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Clementine55 Jan999
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Jan999 Clementine55
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linda23833 eve33308
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One thing for sure is taking thinks very slowly, even though I feel alright in my self. Still smelly and nervous when I open bowls.
Took someone's advise today and put a wet towel in freezer to help bring down the swelling. Do hope no one goes to my freezer. 🙈🙈
eve33308 linda23833
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Clementine55 eve33308
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Jan999 Clementine55
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Clementine55 Jan999
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Thank you for your reply. I'm in uk and have been on the Gyno Physio lost for 2-3 weeks. I've made another appointment to see the GP who I wasn't that keen on and I told her I need to come back and see her because basically I'm having trouble walking ....
Thanks
Jan999 Clementine55
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Clementine55 Jan999
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Anybody know anything about soya and oestrogen?
Jan999 Clementine55
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eve33308 Clementine55
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Clementine55 Jan999
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Jan999 Clementine55
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Jan999 eve33308
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Clementine55 Jan999
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Sorry but my doctor told me this is one of the side affects ..of the prolapse op.
Like you say I'll see the consultant and see what he says .. Above all I don't want surgery.
I'm seeing a chiropractor to have my pelvis aligned as well.
As for soya apparently it's a natural eustrogren ..
Clementine55 Jan999
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Jan999 Clementine55
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Soya is not recommended as much as it was a few years ago. There are some concerns regarding it. Some Urogynaecologists prescribe progesterone pessaries prior to surgery particularly in post menopausal women who are suffering vaginal atrophy.
Clementine55 Jan999
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May I ask you if you are a patient yourself and if you have could you share your experiences please ..
Thank you
Jan999 Clementine55
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linda23833 Clementine55
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If I had thought that it was going to make matters worse with incontinence I would not of gone forward with op. My consultant did say because of my age (62) it was very unlikely this would improve with exercises on pelvic floor, but stressed it would be very important going forward that this would be part of my exercise programme.
I realise it is going to be sometime before I get back to running, but at the moment I am pleased I went forward with surgery. Just being sensible and drinking loads.
If you have a problem walking you need to get things sorted. No one wants surgery, but sometimes like me it can be beneficial. Fortunately I never had a problem with walking, but always had to wear protection. Great to think I haven't got that problem anymore. I say that with optimism, as very early days.
linda23833 Jan999
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Just trying to use my time at home in a positive way. Drinking loads is hard, as awake in the night doing trips to the loo. Still to help stop any infection it's worth it.
Jan999 linda23833
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linda23833 Jan999
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Jan999 linda23833
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phyl_40063 Jan999
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I would like to ask if you have any idea how often these ops can be redone?
Phyl
Jan999 phyl_40063
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Clementine55 linda23833
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- they gave me meds before the op.
phyl_40063 Jan999
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Phyl xx
phyl_40063
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Jan999 phyl_40063
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phyl_40063 Jan999
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Thanks for getting back, hopefully this time my repair will last much longer and will not need redone again. I was originally under a consultant called ' Dr Mathew' , but had my op cancelled 2 times and ended up having it done by Dr Perrera, this time it has been done by Dr Eileen Reilly (she is one of Dr Perrera''s team) . I am under Glasgow at the Glasgow Royal infirmary, gynaecology department. Pessaries were tried before first op but only helped for short while, prolapse still got worse. Have always been advised to avoid HRT if possible, or told will not make any difference! Just really worried about how to prevent things coming down again in future (still got 10/11 years of working life to get through) , and if the walks do prolapse again will they be able to fix them again?
Phyllis xx
phyl_40063
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Jan999 phyl_40063
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