1. Community
  2. Bones, joints and muscles
  3. Fibromyalgia Syndrome

Lack of sleep is killing me

Posted , 3 users are following.

kimhawkstone39
kimhawkstone39

Hi I have been diagnosed with Fibro and get the pain, twitches etc. I am loads of medication but the hardest part for me is the constant worry feeling and lack of sleep. I have tried everything to sleep but it isn't working. I feel so down and somedays so lonely with it all I know lack of sleep does not help. I walk with a crutch now I have other health issues to thanke to specialists who kept saying all I had was migraine I went on to have 2 mini strokes due to other health and for years i have asked have i got fibro to be told too young and now i am 44 they said yes. Please give advise on sleep and lonely feeling etc the list goes on kim

0 likes, 23 replies

23 Replies

Prev
  • Flowerlady
    Flowerlady kimhawkstone39

    Posted

    Hello, I to were diagnosed with fibro 3 years ago ,i were put on Pregablin and I kept telling the dr they were not suiting me so please can I have something else. He also gave me Oramorph which helps. But the side effects from the Pregabs were awful, my weight increased, dizzy and after 2 hours of taking I thought I were drunk could not get my words out properly either. So i did what I thought right and weaned myself off them, I then lost 10lb (wish it was lots more) I am still in loads of pain but are continuing with the Oramorph and Paracetamol for now. I am having another visit to the Rheumy in August can't wait. If I am struggling with the pain, I go for a walk, It helps a little. I too have to manage on 2 hours sleep its very hard for us all suffering with this Fibro. I am glad I found this site, someoneelse to chat with that suffers the same. By the way I live near Shrewsbury Shropshire. 
    • hope4cure
      hope4cure Flowerlady

      Posted

      Kim..

      I hear u with UR struggles with FM.. I have tried meds. Some made me sick. Others created more health issue or I had allergies. The rhumey wants to now pot me on a bio drug Humira I also have psoriatic arthritis. Both diseases are considered auto immune disease. I just wandered if any one has tried any bio drugs. I will not try any just don't feel they help enough or that the newer one have not been on the market long enough.

      have u tried MOBIC it can supress the immune system it's considered a DEMARD.

       

    • kimhawkstone39
      kimhawkstone39 hope4cure

      Posted

      I have to watch what else I take as I take  chemo drug for my blood it is so difficult 
Back to top
Prev

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.