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I'm posting on behalf of my mum and If anyone has any thoughts, ideas, suggestions or advice we would be so grateful.
My mum had her first seizure around 5 years ago, but due to a reaction to the medication, the doctor and neurologist decided she was relatively low risk and didn't have to continue to take anything. She remained seizure free up until a year ago. First she started to get migraines that were accompanied by stoke like symptoms (which went back to normal in a couple of days) but this was soon replaced by seizures. After the seizure she would have right sided weakness accompanied by speech and memory problems. Again, this would return to normal within a couple of days.
After the last seizure she had, her doctor put her on a low dose of Lamotrigine 50mg. A couple of months later, she displayed the usual pre seizure symptoms but where as within a couple of days, she would bounce back, her mobility on the right side and her memory/speech was still slightly effected.
Over the last year, she has had no more seizures but is now unable to walk, unable to use her right had and her memory and speech is severely effected. She knows what she wants to say but the words don't seem to come out. This is all beyond frustrating for her and as her daughter, it's breaking my heart to see her like this.
She has had MRI scans on both her brain and spine which has shown nothing. After some research, I noticed that her symptoms could possibily be a side effect of the Lamotrigine? The doctor and neurologist have no idea what could be causing her issues so have advised her to reduced the dose to 25mg and gradually taper off completely.
She has now been taking 25mg for 3 weeks and her speech and memory is the worst it's been. My question is, could it be possible that the reduced dose is causing this in a 'gets worse before it gets better' type way? I might be clutching at straws but everything only seemed worse when she started the Lamotrigine and if so, the side effects of it has basically disabled her, not the seizures!
ANY thoughts or encouragement welcomed! Thank you 😃
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