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Large complex cyst being removed this week ... worried

Posted , 8 users are following.

Bexp66
Bexp66

Hi ladies,

I have been reading here for a few weeks and have found it really helpful reading of others experiances of cysts. This coming week I am having surgery to have mine removed and am feeling rather anxious.

I discovered a lump about the size of an egg just before Christmas and the first doctor I saw told me that there was so much fatty tissue he couldn't find a lump! It took me 6 weeks to puck up courage to go back but when I did the lump was the size of an orange. I had an ultrasound that showed a 15.5cm complex ovarian cyst, septated, shadows, etc. So I was referred to a gynaecologist oncologist. My CA125 was only slightly raised, 44 and not really otherwise unwell. He was very laid back, said the worst case scenario would be a borderline tumour. I am not sure how he could be so sure but he was. I am 48 and premenopausal so I know I am low risk ... but I don't know how he could say so definitely that it wouldn't be ovarian cancer.

Anyway, he referred me for an MRI saying he would either refer me to a general gynaecologist for surgery if it wasn't very suspicious or he would do it if it looked suspicious. After the MRI I received a phone call from his secretary telling me surgery would be with him in a week ... it seems to have moved quite fast. I have had my pre-op yesterday, on Tuesday I have a CT scan and on Wednesday he is doing a total hysterectomy, both ovaries and also the omentum(?). He may try key hole or it may be a full incision. The cyst is now the size of a 20+week foetus so I am looking a little pregnant but other than the discomfort am still feeling well.

In some ways I am not overly worried, he seemed so sure (without actually examining me or looking at any scans!) that the concern was very low, and yet the whole process is scary. I am lucky because the surgery is being done at a cancer centre so I know I am in good hands. I just wondered if any other ladies have had a similar experience? I wonder what was seen on the MRI to show concern and I am not sure why I am now having a CT the day before as well. I wont get to speak to the surgeon until the day of the operation. I did mention to his secretary that I was concerned at the speed of things and she said that when they first looked at next available dates it would have been into May which was too long so I have been fitted in sooner.

Anyway, sorry to ramble on ... I feel like I am in an alien territory! I don't know if I should be more concerned than I am  or whether I am okay staying fairly calm!!

If anyone has had anything similar I would really appreciate hearing from you,

Becky

0 likes, 23 replies

23 Replies

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  • beck605
    beck605 Bexp66

    Posted

    Hello please let me know how you get on with surgery. I an due surgery in April but not got an exact date yet. I have a complex cyst on my right ovary that was spotted at my 12 week pregnancy scan. My baby girl is now 10 week old and at a follow up appointment the cyst had gone from 7cm to 11cm! My CA125 is 59. I am 25 so the consultant told me it's unlikely cancer but may be borderline. The CT result I think is so they can assess whether there is any disease outside the ovary which on mine there was not so that good news but I'm so scared about it being borderline and scared of surgery so if you could post back to let us know how you get on please smile thanks x
    • Bexp66
      Bexp66 beck605

      Posted

      Hi Beck,

      I will indeed stay in touch ... I have found other peoples stories far more helpful than anything else on the web. I may be a bit quiet for a few days as I have my op tomorrow but I will be back! It is all scary, isnt it, but good that you seem to be being looked after really well. I am scared of the borderline diagnosis as well, and I have a tiny worry about full ovarian cancer too if I am honest even though the surgeon seemed to dismiss it as a possibility - I just cant see how he could know. Anyway, take care x

    • beck605
      beck605 Bexp66

      Posted

      Thank you and good luck for tomorrow!! smile x
    • sylvia71047
      sylvia71047 beck605

      Posted

      Hi beck605- sounds Ok to me. I was told I was borderline but that was because of my age.My CT scan showed no disease outside the ovary and your CA125 is not in the 100s or 1000s like with cancer. My cysts were both benign. Surgery was a  doddle compared to the waiting and worrying- you will be well looked after and given all you need to have a good recovery.x
    • beck605
      beck605 sylvia71047

      Posted

      Thank you so much Sylvia, you don't know how much it means to hear someone else put yur mind at rest with a similar storey. I can't wait for surgery now. I just want it out and to get back to my normal self smile they are taking my right ovary to as the consultant said its unlikely to be functioning now but I don't mind as long as I'm ok and get good results! Thanks again smile
  • evonne3232
    evonne3232 Bexp66

    Posted

    Hi bex

    Goodluck for today hope everythn goes ok i'm sure it will be

    Mind take it easy x

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