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I will soon be 29 years old. I have a large complex cyst in my left ovary that has the potential to be a tumor. It is 9.4 x 7.6 x 5.6 cm (208ml)
The cyst was first discovered in my left ovary back in 2013 (almost 7 years ago). It was much smaller at that time and I was told it only required monitoring and to have a follow up ultra-sound done within the next 3 years.
I had an ultra sound done in 2015 - which didn't come back with any concerns. So I assumed the cyst was either gone or completely benign and just went about my life, not really thinking about it.
Fast forward to today.
I have not had a regular period in at least 2 years. Pretty much no periods at all. At most; very slight spotting every 6 months or so. My doctor said this was completely normal due to the birth control (lolo) I'm on and have been taking daily for approximately 5 years now.
Last month I made an appointment to see my doctor after doing some research online which lead me to discover polycystic ovarian syndrome. I have every symptom it describes so I was eager to have another ultrasound done and some bloodwork to determine for sure. If I did have PCOS I wanted to begin treatment right away and was excited to finally have something to explain my adult acne, hair thinning, lack of periods, etc.
My bloodwork came back pretty much inconclusive due to the birth controls affect on hormones levels. Except that my estridol levels are low and prolactin levels are high. My doctor pretty much dismissed my blood test results and said to have follow up blood work done just to monitor the prolactin levels.
My ultra sound did not show multiple cysts like polycystic would imply. Just one large avascular complex cyst with small mural solid component(s) and further characterization with MRI and gynecologic consultation required.
I was informed of the results in a follow-up appointment with my family doctor on January 15st. I have to wait till March 21st for an MRI. And I am still yet to get an appointment with a gynecologist despite my doctors urgency in her request.
So what do I do while I wait? Any and all the research I do only scares me more. And I am much more aware of the discomfort it is causing me physically. I'm sure I just ignored it before and that it has been present for a while but now it is not as easy to ignore. I often have a strange leg pain/discomfort in my left leg. Back pressure and discomfort. Substantial bloating around my mid section.
And I have so many questions. My whole reason for sharing my story was to hopefully get some answers. And hear of others similar experiences.
Is it safe to continue with normal physical activity with a cyst of this size? Or should I take it easy to avoid torsion or rupture till I can have surgery to have it removed?
Will surgery likely be able to remove just the cyst/tumor or will they have to take one or both of my ovaries?
Has anyone had a large but benign ovarian tumor removed and went on to carry a pregnancy to term?
If my tumor is malignant does that mean I likely have less then 5 years to live?
Is there anything I can do while I wait to have an MRI done/surgery?
Is it normal to wait weeks to get in to see a gynecologist?
Thank-you for taking the time to read my story.
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