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hello everyone, just wanted to say this is gonna be my last post (maybe one more if I recover). Ive been struggling for a long time and today I realized Ive been dealing with cfs for some time now and not mono. The reason behind this is that my symptoms tends to be influenced by only one thing, which is stimulation of my autonomic system. Also it seems that my autonomic system is not working properly (any activity creates disproportional stress response even without me being actually stressed/nervous, and rest and relax response doesnt occur automatically like it should.
. For example, yesterday I had a reaction to my immuno boosting meds, which basically make me tired, achy and a bit of fever as well, but I feel completely normal, just ill. I was like this the whole day not being able to move because of exhaustion (but felt like Im resting) . As soon as my friend came over and I got excited and going, the fatigue disappearred after crossing a treshold and I havent felt it even when I tried to to sleep that night. Consequently, I slept very badly, still stuck in the excited mode and even though I am usually not morning person, who likes to sleep in and lay in bed, I couldnt and had to get up because I was still wired from last night. There is a debate that this kind if prolonged activation of stress neural network is causing cfs. I will crash after this today or tommorow after the excitement high disappears. I can influence it a bit by active relaxation, but its happening automatically in my body, unrelated to how nervous I actually am.
I havent been evaluated for it yet cause I was just too tired to go to another doctor, but Im gonna try to go next week.
Take care everyone and I would like to thank you for all the support throughtout the years.
Very special thanks to craig and his caring heart, I have you in my prayers dont worry.
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