Lazy or scared? Exercise....yes or no?

Posted , 8 users are following.

Hi there....I'm feeling so much better lately that I've been thinking about exercising....but I just can't bring myself to start doing anything. I don't know if I'm just being lazy or I'm too scared to try....just walking has been difficult (and can still be if I'm tired) and I don't want to make the PMR worse.... I know everyone talks about how we should exercise, but honestly the whole idea of it sends me into a panic.

The year before I was diagnosed I was regularly running up to 10km three times a week and had been doing triathlons.... I know how much hard work it is to get fitness up!!  

I'm on MXT and down to 7.5mg as of this week - just when the adrenals will need to start kicking back in - is it a bad idea to push my body now?

I'm just so sick of be "fat, sick and nearly dead"

1 like, 23 replies

23 Replies

Prev
  • Posted

    I stopped taking Prednisolone about 4 months ago after tailing off. At first it was fine although a bit scary expecting it to flare up again. I had suffered too much with weight gain and stomach agony as well as personality changes. I have lost a lot of weight, especially on my face. I know I still have PMR symtoms which my doctor insists is arthritis which I also have(pre PMR) and that is why he insisted I came off Prednisolone and just used NSAIDS. I use a tricycle raised on ramps in my garden with the ost spectacular views accross Oxfordshire and am never bored of using it. I am going to raise the seat this week as I feel stronger.

    The one thing I have had since the beginning of Pred is sever water retention. putting a strain on my already stented heart. I take two water pills a day but my legs were still like ballons full of sloshing water. Four days ago I started to wear my husbands lymphodema compression stockings (he has MS) these were full length stockings that he didnt like so brand new... My legs are down to the size they were when I was a fashion model 50 years ago and my breathing has improved so much.I have now ordered full length arm comression sleeves and will let you know how they go.

    The strength in my legs has trippled and improving daily. I wear the stockings 24 hours a day at present because my legs would swell even in bed. I have enough pairs to change them and have bought the same number for arms. Even the jhodpor thighs that had developed have shrunk considerably ! although they are not covered by the stockings.

    I would certainly recommend these for those awful orange peal dimpled thighs because for the first time in ten years they have also gone ... in four days !

    I have no qualms wearing these things for life....my feet have gone down by two sizes. I told my doctor I felt as if I had elephantiasis and he laughed and said it was age! and of course the innevitable arthritis.

    I also have moments of fear of moving...or my body not responding to my mind. I juast accept it and put on an exciting video, Vikings or Game of Thrones...after that I feel well enough to get up and get on with things.

    I have pain but can bear that, more then the side effects of Prednisolone. Some afternoons I have to sleep for a couple of hours especialy after shopping. I work one day a week for a very nice and understanding client and cook all their meals for the week.

    I still have a bit of trouble lifting my right arm but am hoping the compression garments will help as much as they helped my legs.

    I have a lot of water retention and dimpling around the upper arm where the stiffness is.

    I know it sounds impossible but dont give up...work around.

    If I feel I have to lie down i peel potatoes or shell peas. anything to not feel guilty and useless.

     

    • Posted

      The arm comression garments came this morning and I have worn them all day, I have had no pain in my arms at all apart from when one of the garments rolled down and pinched but I fixed that. I can also hold my arm above my head which is a great relief...I will be washing my hair tonight even if I have to wear them...I have other pairs.
    • Posted

      I just wish I didn't look like a mummy! however two weeks back I would never have thought to care about my looks. I am so glad I kept all my lovely shoes that I couldn't wear...I can put them on again for the forst time in 3 years !

       

    • Posted

      Flowing robes should cover the mummy effect and you can channel the 1960's.  You could look gorgeous!

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.