LDN (Low dose Naltrexone)
Posted , 10 users are following.
Has anyone heard of this being used for pmr/fibro/cfs?
0 likes, 15 replies
Posted , 10 users are following.
Has anyone heard of this being used for pmr/fibro/cfs?
0 likes, 15 replies
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diane67131 karen48559
Posted
Yes, I have. I've spent the last month reading everything I can about it. I feel pretty confident that it's relatively safe to take, certainly more so than prednisone. I weaned off of prednisone a couple of months ago but of course I still have PMR so I continue to experience some stiffness and discomfort, which is a nuisance, so that has prompted me to consider it. Neither my rheumatologist nor GP would prescribe it (I don't think either of them had ever heard of it) but I found an osteopath who practices more of a holistic approach to health who does so I'm meeting with him in a couple of weeks and am going to give it a go. I'm not on any other medication so I feel relatively safe in taking it. Are you considering it?
karen48559 diane67131
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diane67131 karen48559
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karen48559 diane67131
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I'd be very interested to hear how you get along with it. I'll let you know my docs response on the 3rd June whewn I hit him with the question.
patti17783 karen48559
Posted
Was suggested to me by my primary care Dr. Not my rheumatologist. My rheumatologist seems to be very conservative. I will talk with him about it but l will NOT go off of it. It was life changing for me. I feel So much more like myself being only on 4 mg. of prednisone!! My mood is better , my weight is more in control and I am not fatigued!!
I started on 1.5 dosage of naltrexone for 14 days then increased the dosage to 3 mg. I had a few weird dreams but honestly they were entertaining.
I hope that you all try it and that you have as much success with it as I have!!! Good luck
patti17783 karen48559
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patti17783
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karen48559 patti17783
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maid_mariane karen48559
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Mariane Canada
diane67131 maid_mariane
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karen48559 maid_mariane
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diane67131 maid_mariane
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EileenH diane67131
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LDN is being used by a lady in Norway where it is used as and when - it isn't approved for PMR in the UK so isn't used. There is a private GP in central Wales who uses it - no doubt, at a price! Many doctors will know about it - it is used in drug addiction. The question comes up every few years - but there still isn't any real evidence.
diane67131 EileenH
Posted
Thanks for clarifying that, about the links. I assumed that's why it never launched but wasn't totally sure.
Provided this new doc will agree to a prescription, I'm going to submit to being a bit of a guinea pig and give LDN a try. Heck, I've tried everything else but the witch doctor, so why not?
helen88071 karen48559
Posted