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Posted , 4 users are following.
You all seem to have been given information (Necessary ) about your colonoscopy,the number of pouches, the state of your colon.. had polyps removed there and then ,,and were generally well informed . I was told the polyps that were in situ,, number not told,,, ,but had been left,,,no explanation why. I asked questions about what I saw during the procedure, again silence. I also saw that the tubing ,with camera, had doubled back on itself ,again, no explanation,then or since. I am not aware that there is a clinic for us, but would really like to hear, how to get some information about me and my colon ....
0 likes, 9 replies
Sonne jacqueline01135
Posted
Jacqueline01135, those are your medical records. Take your issue to your PCP. If you still don't get an answer put in a formal request for your medical records and read them yourself it is your right as a patient
jacqueline01135 Sonne
Posted
Sonne jacqueline01135
Posted
jacqueline01135 Sonne
Posted
Ah,, right,,, find them a tad reluctant to divulge any info. Did ask before if they had an x-ray of my colon,but the answer was ..he didn't have it.
joann51897 jacqueline01135
Posted
Your primary care physician should have ALL of your medical records. If they say they don't then I would question how they know what's going on with your health at all times. You have a right to always ask for a copy of your records or tests of any kind. For example I had to go to the ER last night because I was passing kidney stones but I had some other things going on also they did chest xray, ct scan, pelvic exam, ultrasound, bloodwork I asked for a copy of all of my resaults and all were given to me no questions asked. Don't ever b afraid to ask about your own health and if your doctor is not willing to cooperate with you my suggestion would b to maybe find a new doctor not to b mean but that's just what I would do. Good luck.
jacqueline01135 joann51897
Posted
Thank you ,I was totally unaware we could ask for copies of everything, thought info was on a par with the
highly confidential files, When I have asked previously for info on blood results ,doc pops it up on his
computer, rattles through the results and says everything is fine, except for------------and then I am told not to worry about "that one " I have changed surgeries in the last year,, " frying pan to fat " comes to mind.
Appointments take so long these days, unless you opt for the Pot Luck ,road, by taking the early morning
gamble.
etheremail jacqueline01135
Posted
jacqueline01135 etheremail
Posted
Thank you,, I will, but I really need more than the allotted ten minutes to discuss my unknown D.D.
It's very frustrating.and a bit scary ,not to be able to find out about it.
Guest jacqueline01135
Posted
I gather from your reply that you are UK based, not USA, so the systems are different. You are still entitled to see your medical records. However getting to find someone to actually talk to is just about impossible, and then you'll just find out that you know more about the disease than your doctor. When you had your colonoscopy you should have been given a copy of the results, and this is all the doctor will have, and all your records will show. Your doctor won't have access to what you saw on the screen. You MAY, if you are lucky, get an explanation of what it might mean. But I think that is why so many people join the forums - because they can't get the information through the proper channels. All I got from the Consultant was a letter saying "Diverticular Disease - a benign condition" and the same leaflet on 3 different occasions. I seem to remember reading somewhere that some areas have a clinic for people with bowel problems, but I know there is not one in Hampshire or Devon. Good luck.