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You all seem to  have been given information (Necessary ) about your colonoscopy,the number of pouches, the state of your colon.. had polyps removed there and then ,,and were generally well informed . I was told the polyps that  were in situ,, number not told,,, ,but  had been left,,,no explanation why. I asked questions about what I saw during the procedure, again silence. I also saw that the tubing ,with camera, had doubled back on itself ,again, no explanation,then or since.  I am not aware that there is a clinic for us, but would really like to hear, how to get some information about me and my colon ....

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9 Replies

  • Posted

    Jacqueline01135,  those are your medical records.  Take your issue to your PCP. If  you still don't get an answer put in a formal request for your medical records and read them yourself it is your right as a patient

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    • Posted

      Hello... sorry to sound ignorant,,, but what is a PCP ? Thank you anyway for the guidance,My hunting, has obviously been down the wrong roads, So much easier when we get a little help x
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  • Posted

    Jacqueline a  PCP is the physician that takes care of you on a regular basis
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  • Posted

    Your primary care physician should have ALL of your medical records. If they say they don't then I would question how they know what's going on with your health at all times. You have a right to always ask for a copy of your records or tests of any kind. For example I had to go to the ER last night because I was passing kidney stones but I had some other things going on also they did chest xray, ct scan, pelvic exam, ultrasound, bloodwork I asked for a copy of all of my resaults and all were given to me no questions asked. Don't ever b afraid to ask about your own health and if your doctor is not willing to cooperate with you my suggestion would b to maybe find a new doctor not to b mean but that's just what I would do. Good luck.

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    • Posted

      Thank you ,I was totally unaware we could ask for copies of everything, thought info was on a par with the 

      highly confidential files, When I have asked previously for info on blood results ,doc pops it up  on  his 

      computer, rattles through the results and says everything is fine, except for------------and then I am told not to worry about  "that one "   I have changed surgeries in the last year,, " frying pan to fat " comes to mind.

      Appointments take so long these days, unless you opt for the Pot Luck ,road, by taking the early morning

      gamble.    

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  • Posted

    Ask for the report that should have been sent to your GP.
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  • Posted

    I gather from your reply that you are UK based, not USA, so the systems are different.  You are still entitled to see your medical records.  However getting to find someone to actually talk to is just about impossible, and then you'll just find out that you know more about the disease than your doctor.  When you had your colonoscopy you should have been given a copy of the results, and this is all the doctor will have, and all your records will show.  Your doctor won't have access to what you saw on the screen.  You MAY, if you are lucky, get an explanation of what it might mean.  But I think that is why so many people join the forums - because they can't get the information through the proper channels.  All I got from the Consultant was a letter saying "Diverticular Disease - a benign condition" and the same leaflet on 3 different occasions.  I seem to remember reading somewhere that some areas have a clinic for people with bowel problems, but I know there is not one in Hampshire or Devon.  Good luck.

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