Left side head pressure, tender spot, neck issues

I'm blown away by how many people have the exact (more or less) symptoms I'm having... and I'm also reassured.  It's nice to know I'm not crazy.  Haha.

All my issues started with a normal migraine on a sunday, (I too take Rizatriptan for my migraines, and I too am allergic to Gabapentin - which sucks, cause I liked it).  My migraine went away, but I was left with a severe pain in my left temple.  The pain continued and I asked my sister about it (my go to person for medical things as she's been a medical transcriptionist for over 30 yrs).  She said it sounded like Temporal Arthritis.  Dr seen, blood work/steroid shot no change.  Then he asked what Brain Cancer my gma died from.  (Blastoglioma - the really bad one)  That, most unfortunately, sent me spiraling downhill to the Valley of All Panic.  It's been horrible.

The pain isn't really a "pain" all the time... most of the time it's a pressure, annoyance, with moments of discomfort and at times an actual pain.  It affects my eye, and my vision.  I can also feel it in my jaw at times.  I have had face numbing and tingling on the left side only, as well as discomfort going down the left side of my neck.  I have had severe chest pain, specifically on the left side of my heart and that ran down towards my left arm.  Tingling and numbness in my left thumb as well.  On occasion the right and front side of my head is affected with a headache.  The front part I know is a normal tension headache.  Not sure what I'm feeling on the right. TIGHT muscles does NOT adequately describe my shoulders.  That is putting it mildly.  I have had tight, rock hard shoulder muscles for many years.  To the point I'm pretty certain that is their "norm" now.  I have done research and know that one massage once a week won't fix that... because that's the norm, they will just instantly go back to being tight.  I have read a post from a man who had the same issues with his shoulder/upper back muscles, who used a tennis ball against a wall to knead and massage his muscles every day for a month, and finally got them how they should be.  (little info to keep in mind)

I have disc degeneration in my neck, scoliosis further down between my shoulder blades, and a tilted and twisted pelvis.  So I KNOW my bones aren't what they should be. 

I had a CT done, without contrast as I'm allergic to CT Constrast with no findings.  And yesterday I had an MRI with/without contrast done yesterday.  I have noticed with my untrained extremely nervous eyes some odd findings.  Typically there is some Symmetry and I have found some rather noticeable asymmetry around my sinuses.

Which brings up another symptom I didn't mention... my sinuses do feel full, left side only.  My nose doesn't run, and I can breathe using my left side, but it's at a way lower level than the right.  Also, I have noted when having a migraine/head pain, my left side sinuses always feel clogged and pressured.  I too (as I read in previous posts) have taken a sinus med/nasal decongestant and found relief of the head pain that I felt in the past.  

I recall early on having temple pain before, and nothing would alleviate the pain, then I randomly took an nasal decongestant cause my nose felt stuffy, and the pain stopped.  (Another thing to try for some of you).

I am very much a mess.  Due to all this unexplained discomfort that hasn't eased up in 3 weeks now (I can't imagine how some of you have made it so long with these issues) I'm now on a happy pill.  Carbamapezine.  I think it's for seizures and the lady at the pharmacy called it a "mood stabilizer".  The Dr prescribed me Ativan, but I couldn't handle how it made me feel foggy and lethargic.  I'm a single mother of two littles... I can't function like that... and that is also where most my anxiety/fear comes from.  I cannot leave them to their fathers... haha.  They NEED me.  And I feel a lot of responsibility and pressure because of that.  

I don't remember when the last post was made, hopefully some of you are still reading and updating.  I will update when I learn more.

I push things with the medical field.  I don't have the ability to sit by and wait for them to figure it out.  I go through my scans/blood work (which btw, I had a CBC done and it was all normal), and do a lot of research.  For example... I had multiple miscarriages and my drs were content to just have me keep trying till I eventually had a baby.  >  I researched my labs, decided based off those labs that I needed Lovenox, got pregnant again and my OBGYN  said no, so I bypassed him went to a specialist who gave it to me, and carried my son to term. 

You are your best advocate.  You know how you feel, and if it's not right, it's not right.  I am so thankful for the medical field and the advances they have made... but sometimes we're just another patient.

Good luck to everyone.

Hi, 

It can be stressful and expensive to find out what's causing chronic pains so I promised myself I'd let you guys know if I found anything out about it... my symptoms are head pressure neck pain right side sometimes I feel cloudy' and constant shoulder pain headaches ranging from ice pick to bruise like feelings right side for two years. I compiled this info and went to the dr he said it is most likely radiculopathy aka pinched nerve in neck which sends signals that tense muscles and causes headaches he recommended heat and stretching. I asked for MRI to be sure so i may be doing that as well but he said it's likely it will show nothing at all. Anyway that's my contribution good luck you guys! See your doctor if you're in pain.

I have all of these symptoms too. I went to my primary and he seems to think it’s a viral infection that will go away on its own. Have you found any relief? It’s causing me a great deal of stress and anxiety. 

Its been 3 years. Ive done every kind of testing. This month im seeing a maxofacial specialist along with a 2nd MRI. An xray done in 2017 showed my neck is straight. And the pressure on my right aide kinda muffling my ear but also just hurts is constant. I was told ny a nureologist to lose weight, same neurologist told me to see a therapist and later on said my MRI done in 2016 was spectacular. The thing is, I lost weight, saw a therapist and 2 different Drs said they see I have hypertension on my right side. Not so spectacular. Symptoms are on my neck and side, pain and a strange movment happens. Much like a strain in my eye and blur I see it as ocular damage. Every specialist Ive seen said togo to a nureologist. That guy however is not interested in helping. When I srive it bothers me but not as much as when im not driving. So June 11th will be my second MRI and im hoping irs not MS. (Another Dr. ordered ot but itll go to same nuerologist from 2016 unfortunately). The stress and Anxiety slowed my life down by Alot. So im taking Xanax when it goes overwhelming. Im hoping the facial maxosurgen can help. If not then 2nd MRI and who knows. Im not done searching. Just worn out.