Left side head pressure, tender spot, neck issues

Oh wow, so many of yr symptoms sound like mine. I too have tinnitis, neck pain, head pain along base, back of head and behind eyes. I have temple pain as eell that feels like someone squeezing my temples, peppermint and lemon essential oils help this, but the buzzing in my head and sometimes like a thumping feeling. Sometimes at night when I close my eyes it feels like my eyes have rapid movement, yet when I open thm it's ok..my head just doesn't feel right. I also have like a ridge or indention along crown of my head and wonder if this has something to do with it..I continue Goin 2 an Ent, cuz I have reflux and globus. But am planning going to a neurologist..yes please let's keep in touch with what we find out..I'm really getting anxious about these symptoms..I just don't feel right in the head..thanks for any updates

HelloHumdiddydum, How are you? Anything new with your symptoms? Hoping yr better..

Im sorry youre going through this madness too. No im no better I much believe im getting worse. The only things that has shown up in any test is low blood pressure and disk bulges in C5 &6 plus loss of neck curve.

Neuro thinks is psychological mainly and some form of migrane sensitivity. Im not so sure but how can you know! I cant feel my muscles and they are constantly tense even in my eyes which makes thing so sore all the time and its hard to hold myself up. Had some more bloods done for Rhuematoid conditions and clacium profile, C reactive protein and full blood count. I dont think anything will show up. Drinking lots of water seems to help a bit but not much.

Have you found anything that helps? If my head felt normal I could cooe with all this but the tightness and thr funny eyes and ears is too much sometimes and nothing seems to help those things. I have realised the more I do the worse I am so im trying to keep things limited but still exercise bu walking a little each day. I hope we get answers soon. Have you been tested for Lyme?

Still craziness in my head. Saw where exploding head syndrome is a real symptom. Cuz sometimes my head feels like a door slams or something. Sitting here in ENT now..doubtful any answrs on this front.lemon and peppermint essential oils helps alot with my temple aches. I just hope it's nothing like blood vessels in my head..I just want to feel normal..yes, iv got that horrid feeling in my eyes, like aches and ears feel full..well I will keep ya updated. Hope u get some answrs as well. I'm not Goin to keep testing. Brain scan maybe 2 xk my vessels but then I'm done. Wht happens just happens. Faith...grace and mercy for whatever it may be..keep in touch..

Hi terrie.  So I went to a TMJ specialist and I was skeptical but turns out I have really bad what is actually called TMD on my left side and a mild case of it on my right side.  They did a CT scan of my head and I could see just how close my left jaw bones were.  Doctor said it was more than likely pressing on a nerve in there that is causing my eyes to hurt and my left ear to feel full.  He said that all the muscles in your head will tense up when something is this off kilter in your face.  I had no idea TMD could cause all of this, but it can!  I've been twice now and gotten injections in my face/head.  Yesterday I got 2 injections in my temple, 2 in my jaw, 2 in my neck and 2 in back of my head.  Some of these were to help the nerve pain and some were to help the inflammation. This doctor does not believe in steroids, so the inflammatory drug was not a steroid (yay!!).  Last night was the first night in weeks the crown/back of my head wasn't hurting.  They also made me a custom mouthpiece to wear at night and day.  I apparently have one messed up jaw.  I really do feel better today.  The injection sites hurt some, but I'll take over all the odd pains these past few months.  I just googled and found this doctor.  Well, turns out he was the real deal.  And he said most general MD's do not understand TMD.  I actually was just about to call a neurologist, but I might not now. So if you haven't, it definitely worth getting checked out!  Good luck to you all!

Let me know how you get on I hope you get answers too. I've got to wait until January for my ENT appointment so i'm hoping that sheds some light. I've already had allergy tests and a nasal endoscopy and that showed inflamed turbines but no infection or allergic reaction. I'm thinking maybe Eustation tube dysfuction

I'll keep you posted with any developments

Hello.  I just wrote back to terrie with my findings of my diagnosed TMD.  This actually can cause some pretty bad stuff...  it has more than likely been causing most of my symptoms this year.  I have had terrible neck issue, head pain in the back of my head, temples and crown, face pain, ear pressure, hurts behind my eyes, and it goes on and on.  I've had two different MRI's this year, numerous x-rays...  into the summer my temples started hurting really bad.  Felt this tremendous pressure in my head.  It's been hell this year. 

Funny, my symptoms started in late January.  I definitely understand and feel for you.  And on top of all of this I guess the chronic pain has triggered some anxiety attacks, because I've had a few of those, which of course feels almost like a heart attack. 

This TMJ specialist I go to now said that TMJ or called TMD can cause neck, head, ear and eye issues.  Can make you have some vertigo, which I have had also.  After my CT scan of my face and he saw how out of whack of my left jaw was, he said it definitely could be causing most of my symptoms.  I got 8 injections yesterday and last night was the first time the crown of my head was hurting or the lower part of my head in the back.  I'm going to continue on with the TMJ treatments and hope I continue to improve. 

And my doc said that most medical doctors do not know about TMD that well and cannot diagnose it.  The TMD doctor said he has someone come in almost every day that is diagnosed with it.  It apparently is fairly common and people just have no idea about it.

And I meant to say, after the injections, it was the first time the crown of my head has not hurt. 

Oh jessica, what great news for you! As I'm sure now tht u know, the stress of it all can start calming as well helping you even more so..Iv never heard of TMD. so a dentist can't see that when Tha xray the teeth? Would she (dentist) be able to c if I even had it. Then maybe go to an TMD specialist. I just still wonder about the ridge in my skull..ugh...but..I will def jot dwn the info u shared, thank you, thank you, and see if I can find that kid of a specialist..I went to ENT today. He says all looks good. Wit acid. Tinnitis from high pitch hearing loss, sounds in head from my eustation (?) Tubes..I even had him xk out my crown ridge..lol..he said prob a lymphoma..that he wouldn't worry about it and I should stop lookin up stuff on the internet..I do need to stop..well again, so happy u got some answers..I pray u continue everyday to get better and better..keep us updated!!!

Well he said all looks good. Tha rechecked my hearing and he verified I do have mild hearing loss.thus the tinnitis. I told him bout ear pressure, and strange sounds. He said eustation tubes. For me to hold my nose closed and blow till Tha pop about 20 to 30 times daily and that will help that. I had him 2 ck knot on crown of my head, he said prob a lymphoma that he wouldn't worry. That I shouldn't look up symptoms. He said many patients wud come in freaking ovr something minor that Tha read online..I'm not doing tht anymore..so..Guess I got to live with the T. Probably the strange nouses. I 4got to mention to him bout my temtees and eye aches. I will mention to my reg dr when I go. Jessica told me about TMD. SO probably going to ck tht out too..hope all goes good with ya..hoping and praying we get to the root of all these symptoms..keep in touch!!!

Also did yr jaw bother u at all? And what does TMD stand for?

Hi Jess are you based in the UK or elsewhere? Where did you find your TMD specialist? I'm so glad you've found some relief and I hope you continue to improve! x

Hi terrie...  here is what TMD/TMJ is basically https://www.webmd.com/oral-health/guide/temporomandibular-disorders-tmd#1 So my jaw pops some, but it has never really bothered me.  The doctor believes all the neck issues I've had have been because of this.  I probably would have never went to the doctor if it hadn't of been for the neck issues and headaches and my ears feeling very full.  If you find a doctor who specializes in TMD, make sure they take a CT scan of your face.  That is the only way to tell for sure if it's the jaw/temporal bones that are not right.  When I got the papers listing my issues, it actually said I had arthritis in that joint.  It can cause all kinds of issues like the tinnitus, ear pressure, headaches all over the head, stiffness and achy neck.  I even had what felt like something stuck in my throat earlier this year.  It's been a rollercoaster of symptoms.  And I never would have thought TMD could cause this.  There are other sites about TMD that list even more symptoms that the site above. 

And to mention, I have a very odd shaped head and never really paid much attention to it.  But where crown of my head is, it indents really drastically there.  And since all of these issues, I have noticed it more, but I think it's always been that much of a indent.  It almost feels like I have lumps, but it's really just the indention making it feel that way.  I psyched myself out several times thinking, omg, my head is indenting more.  After the injection in the back of my head, and the pain subsided, I haven't paid near as much attention to it. 

I replied to terrie, but it said the reply is waiting to be moderated??  Is that because I inserted a link??

Anyways, I am from the US.  I live in Arkansas.  The TMD specialist I found was in Little Rock.  I just googled TMJ specialist near me and him and one other popped up for all of AR.  Fortunately I didn't need a referral.  The regular doctors would have never known it was TMJ.  A dentist might would though.  They can probably do a x-ray and see it well enough.  I knew my jaw popped some, so I thought it was worth a visit.  I was shocked to learn how out of whack my jaw/temporal bones really were. And relieved that something was finally found after the endless doctor visits, x-rays, mri's, etc.  I still don't feel great, but I'm going to give the mouthpieces along with the injections some time.  Good luck to you!  And if you pursue this route, I would skip the dentist and try and locate a TMJ/TMD specialist.  Save some time if it really is this.  I was told that not all dentist could diagnose it correctly. 

Terrie, I replied to you under your other post, but it's not going thru, I guess because I put a link to a TMD site.  A dentist should be able to diagnose TMD, but not all.  If you pursue TMD, I would google and find a specialist.  The only sure way to know, is if a CT scan is done of your face.  Good luck to you and hopefully my other post will come thru soon. 

Oh. Okay. I will certainly ck it out. I am in the states as well..well hoping that the shots etc you are doing fixes yr issues.

Question, I ache in my eyes as well. Does yours ache occasionally or every few days? Ent said I did have pressure in my left ear, all where everything seems to be stemming. My head has occasional pains that shoot thru in different areas as well. I just went to dentist and had xrays a month ago. Seems they would have seen something..I'm just to the point I just dnt want to keep going from Dr to dr..gets old doesn't it? Well please keep us updated..maybe yr last message comes thru. Sometimes Tha won't allow certain things. Crazy right? Take care!

Yes, it's more like right behind my eyes I guess...  That has been more prominent here lately.  The TMD doc said that the nerve that the jaw/temporal bone is pressing on is affecting my ear and eyes.  He said that is one of the major complaints of TMD sufferers is ear pressure, tinnitus and eye pain.  I don't guess my other post if ever going to go thru.  Go and just google TMD and you can see what it stands for and other facts about it.  It's a disorder that affects the joint that connects your jaw to the temporal bones of your skull. 

And yes a dentist should catch any bad TMD disorders, but not all will.  Some don't know what to look for is what I was told at least.  Sounds like you have several symptoms that point to TMD.  You need to find a doctor/dentist that will do an evaluation like mine did.  On my first visit they did a CT scan right away to identify the issue.  The CT will tell the tale if there's any TMD issues going on.  I got fortunate and happened upon a good doctor who really understood TMD.  And as I've learned this year, this is rare!  

https://www.webmd.com/women/features/mysteries-of-tmd#1  testing to see if this article will got thru... it's a bit dated, but a good read.

Oh wow. Yes you are fortunate..oh man, that does sound like me for sure. That cud even be why my jaw crackles sometimes when I move it..yep, I Googled it earlier..going to talk to my dentist..thank you. Oh I hope and pray that is the answer to my ear and eye pressure and tinnitis too..

Also, how long, did Tha say, b4 you will see results of yr treatment??

Good question and that is what I asked this week when I was there.  So the nurse that was helping out had TMD and she said she was having bad headaches and such and for her she noticed a difference in the first month of injections and wearing the night mouthpieces and daytime mouthpiece. I can tell you after the injections, that odd pain in the back of my head has calmed down and the odd pain in my temples too.  My ear doesn't feel like it's going to pop any more either.  So either it's a coincidence or the anti-inflammatory injections plus the one for my nerve is really helping. They also hooked my neck and face up to the electro nodes that gently stimulate the muscles.  That probably helped too.  This doctor is a full on treatment doc.  It was expensive, but I didn't even care.  I'm like, 'let's start now!'. Thank goodness for care credit!

Wow, I hope others have read this. This may help them as well...I'm sure at thus stage you will take any help at all from the symptoms. I'm going to Google and c if they have thm here..thanks again. All this is good 2 know. Please keep us updated on yr progress. I pray you are soon healed!

Wow Jessica, so u have the indention too. Yes mine feels Like an indention, but ridge either one and yes other Lil lumps. Yes I too Hav had tht for awhile but just started noticing more. Jeesh, crazy ain't it? Ate you still improving with your symptoms?

Thanks for the link!

I do believe I'm feeling better.  Less aches in my head.  I only have the top part of my mouthpiece but the doc said wear it as much as I can.  And I have been.  I'll get the bottom piece next week.  I'm not sure how long the injections last I have gotten.  I'm going to ask that next week.  But yes, overall I am better.  I talked to several folks I know this past weekend and told them about my TMD and they said they had very similar symptoms.  Crazy how many people sounds like they have TMD issues. 

YW.  Glad the post finally went thru. 

Just read this. Interesting...yet my jaw dnt hurt tho..but wow, so many of the dymptoms. I saved it. Goin to talk to my dentist and dhow her..thanks again..

I hope I can help when you have a neck or back problem it can cause you spasms the muscles knot and can't get the blood flowing then this causes your body to tense up and then the headaches and pain try to relax more go to the pool as it's easier on your body but don't swim as it will aggregate your neck at this stage have acupuncture and remedial massage to release all the toxins in your body also stop holding your he'd down it causes pressure on your neck use hot packs to settle muscles down and take some antinflamtories to get the swelling down around your muscle my sister had the shaking as well it was a nerve pinching in her lower back and the headaches are caused from putting to much pressure on your neck just try some of these remedies and see if it helps hope I helped you also stop stressing just relax

Aggreviate

Jessica, hi how are you doing with your treatments? Is the TMD better?