Leg pain
Posted , 3 users are following.
Hi Jillybee. I also have found this site very helpful, I was diagnosed after a two month delay in November 2009.I started on 15mg of pred and am down to 7 and plucking up courage to go down to 6. I am a bit apprehensive as I now have a Bakers cyst which is making my leg more painful than what it usually is. Hope your feeling better,Janbeano.
0 likes, 6 replies
mrs_k
Posted
If you are plucking up the courage to go down to 6mg - can I ask you why you are plucking up the courage?
Are you still in pain on 7mg - pain that is causing you discomfort?
Has your ESR/CRP rate dropped at the last test?
Have you asked to be referred to a Consultant about either PMR and/or the Bakers Cyst, as sometimes in the case of the cyst, there is no need for treatment, they can disappear, but sometimes they need to be drained. I think you should be asking some hard questions about that particular problem.
November 2009 starting at 15mg and now down to 7mg is a more than a 50% drop in less than two months.Prednisolone is not a cure, it just enables you to gain a quality of life, different from before, but better than untreated PMR.
I don't know if you have visited this site pmr-gca-northeast.org.uk, but you will find on that site, BSR guidelines for the diagnosis and treatment of PMR.
I am a curious old biddy and wish you had put a bit more information into your post, as we are always learning from others on this site.
Hope to here from you soon and perhaps with a little more information we can be of some help to you.
Guest
Posted
mollycoo
Posted
I too have a baker's cyst behind each knee, which are more uncomfortable than painful. My rheumatologist says they don't usually do anything about them, although my GP says surgery can be performed. I'm hoping mine will disappear on their own!!
Best wishes,
Molly.
gillybee
Posted
Thanks for responding to my post.
I increased my Pred up to 15mg today and feeling great so far. So it may seem that 10mg is enough steroid for me as yet.
gilly
Guest
Posted
Lizzie_Ellen
Posted
If its any help I started on 15mgs in late September 2009, dropped to 12.5mgs on 1st Jan 2010, 11mgs on 1st Feb, 10mgs on 1st March and then decreased very slowly at the rate of 1 mg every 7 weeks. I'm now between 4mgs and 5mgs and if all goes well should be off the Prenisolone at the end of August this year. If it doesn't work out I'm not too bothered, will just get on as low a dose as I comfortably can. I learnt very quickly on this forum that fast didn't generally work in the long term, although my Rheumatologist gave a new meaning to the word 'slow' :zzz: If nothing else PMR has taught me to be patient, but it took a while to figure that one out :lol: My present regime is: Wk 1 - 5554555 Wk 2 5545455 Wk 3 5455454 (and so on until Wk 7 4444444!) No hitches (so far!!!). Keep well.
Lizzie Ellen
(just re-read this post, boring isn't it :magic: :wow: :bubbly: :diva: so spruced it up with a few emoticons :lol: )