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Leg Pain From Knee to ankle

Posted , 13 users are following.

alley2
alley2

Hi all hope all is well on this sunny morning.  Has anyone had leg pain from knee down to ankle some times it feels like its in the bone but had xrays and that's all good.  I was taking endep 25mg and this was working so i stopped for 5 days and the pain is back I'm on 10mg pred took me a while to get to there and going to stay there for a couple of months.  but this leg pain is frustating pain through the day pain at night.

0 likes, 18 replies

18 Replies

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  • lynda62707
    lynda62707 alley2

    Posted

    Hi alley, I've had lots of pain in my knees and ankles, not so much down my legs with the exception of my rgt shin. But to be honest, since the dx. of pmr, (almost three mo. ago), it seems I've got SO many unexplained aches and pains and side effects, I can't keep track anymore!! Everyday is a New experience, a New battle to be fought! I'm just trying 2 go w/the flo and be as patient as is possible. "Keep on swimming, swimming, swimming"!

  • anne28129
    anne28129 alley2

    Posted

    Hi

    I have bad pains in my knees and lower legs but have put it down to steroid side effects. I’ve also got a really stiff uncomfortable neck which I assume is also linked to the steroids! Had blood tests on Friday so shall see what they shows up. I’m on 7mg of pred and don’t want to up my dose 

    • Anhaga
      Anhaga anne28129

      Posted

      I thought the steroids were supposed to relieve the neck stiffness, along with everything else....
    • EileenH
      EileenH anne28129

      Posted

      At taht dose I would be far more likely to think it was PMR flaring because the dose is too low. Not the pred which gets a lot of blame when actually innocent.
  • arlene85779
    arlene85779 alley2

    Posted

    I had severe pain in my calves before starting Pred. During the last few weeks before diagnosis it became unbearable especially in bed or not moving. I felt it was deep, deep in my legs and it was like nothing I had ever had before. As soon as I started Pred it eased with just occasional discomfort. Three years down the line i never get sore calves. 
  • EileenH
    EileenH alley2

    Posted

    Is there anything that makes it worse?
    • EileenH
      EileenH

      Posted

      PS - why did you stop the endep? No doubt the doctor gave it you to see if it helped - it is for nerve pain.
    • alley2
      alley2 EileenH

      Posted

      I stopped taking ended to see if the legs had settled down and they haven’t I feel when I’m on them it affects me I feel I’m looking for words if that makes sense.  Back on them my legs are starting to settle down.  Nothing stands out that makes it worse or not.
    • EileenH
      EileenH alley2

      Posted

      Does a lower dose of endep help? Or split?
    • lynda62707
      lynda62707 EileenH

      Posted

      What is endep? I see alot of different drugs on this site which I'm unfamiliar with. Do you know of anything that specifically addresses muscle spasms as I seem to be being plagued by them right now, especially in my back and abdomen. Just not flexiril tho as it gives me "restless legs". Thanks in advance.

    • EileenH
      EileenH lynda62707

      Posted

      endep is a brand name for amitriptyline, a drug used for nerve pain in our context. You can always google a drug name - in the UK we usually use the substance name rather than brand names. One substance can have half a dozen different brand names.

      Physical therapy is the best way to address spasmed muscles - there are drugs but they work on all the muscles, not just the ones that are a problem so they cause side effects.

  • daisylazy
    daisylazy alley2

    Posted

    Hi Alley I get pain in my legs all the way from hips to ankles Don't know what it is .It is there resting or moving ,not all the time .Solpadeine relieved mine .On 3mg of pred Hope you get relief .

  • peggy_56092
    peggy_56092 alley2

    Posted

    i had leg pain from hip to ankle and it was a flare.  I upped pred to 15 from 7, dropped back to 10 within a few days and am now at 9 where I will stay for a while. 
  • celia14153
    celia14153 alley2

    Posted

    Hi, I get leg pain which I’m hoping will reduce as I taper. At one stage my legs felt very jellified!  I walk and do some gentle yoga to keep the muscle tone. My physio suggested that I put a pillow between my knees when I sleep on my side and this does help. 

     

  • alley2
    alley2

    Posted

    Thankyou everyone I'll just keep doing what I'm doing for a month then try to reduce by half Pred.

     

    • EileenH
      EileenH alley2

      Posted

      That IS half a mg I hope, not half the dose!
    • alley2
      alley2 EileenH

      Posted

      Ha ha yes half a mg don’t want to think of what would happen if I went to five probably end up in hospital.
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