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I was wondering if anyone could offer any advice or suggestions.
I am 36 years old female and have suffered from a non healing venous leg ulcer for just over 5 years now and have attended leg ulcer clinic twice a week ever since. It started as a small scratch on the front of my left leg after hurting it on a bike pedal. I seen to have had a bad reaction to everything which has touched my leg including double base with exception of the inadine dressings.
I have been previously treated using the 2 layer and 4 layer compression bandaging and inadine dressings, which was changed on 8th November 2013 to Juxta Cure Compression Wrap (which I personally prefer) by the Vascular Nurse along with Alginate Dressings and ended in my leg being infected for 5 months as nurses kept saying my leg didnt look clinically infected and refused to swab it, this resulted in me being unable to stand or walk for 8 months (can stand and walk for about an hour now but still in some pain) due to the burning and stinging and the amount of pain I was in.
Over the last 3 months I have been back on the inadine dressings, infection free and finally seen a little improvement each week. Last tuesday (5th Aug 2014) I attended the ulcer clinic as normal but seen another nurse which was covering staff holidays and who hasnt been back in clinic since decided I didnt need the inadine dressings and prescribed Prontosan Gel (I am already using Prontosan Would Irritation Solution).
At the time I explained my concern to changing from Inadine dressings to the prontosan gel as I have previously had a bad reaction to nearly everything else that they have tried including the Inadine powder (cant remember exact name off top of my head sorry) which I was assured I wouldnt have a reaction to as I was ok with Inadine dressings. I was reasured that I wouldnt have a reaction and it would be ok.
The prontosan gel has been on my leg 7 days (changed on Tuesdays and Fridays) and my ulcer is already shown signs of infection (waiting on swab results), however they still insisted on keeping me on the gel yestarday and my concerns were once again brushed under the table. The ulcer itself was looking quite healthy and better than it had ever been while on the inadine dressings, yestarday it looks darker than its been for the last few weeks, and the area around the ulcer is now white and looks thicker (not sure if this has an exact name).
I was under a new consultant at the hospital who booked me in for a deep vain scan which came back clear (I had waited for the scan for 4 months before finding out the old consultant hadnt even booked it). He was happy for me to continue with the compression and discharged me. The nurses have tried to referred me back to the hospital consultant again but there has been no follow up from my GP surgery on this and no one can tell me why just that they will look into it.
I am not sure what to do next. I have tried raise my concerns regarding my treatment etc with both the district nursing team at the clinc and my GP but dont seem to get anywhere.
Also I am worred that having my leg washed in a plastic bucket filled with tap water wont be helping my leg, sometimes when my ulcer has been bleeding they water obviously becomes discoloured due to the blood and the nurses use this same water to wash my leg including the ulcer. Both hands although they do use gloves are in the water then touching my leg, the clean swabs, cream etc, doesnt that spread infections especially if when my leg is already infected?
I have got to the point now I just dont know what to do, not only is it affecting myself but also my husband with having to take time off work to look after our 4 children doing school runs etc.
Sorry my post is so long and thank you for taking the time to read it, I would really appreciate any advice or to hear from anyone else in who has been through the same thing.
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