Legionnaires' Disease Week 6 -he's home!!!
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:D
Yippee My husband is finally home with strict instructions from the hospital on how he leads his life for the present.
I SPENT MOST OF LAST NIGHT AWAKE WHILE HE SLEPT WORRYING ABOUT HIS BREATHING!!!silly me.
The trachaeotomy site seems clean with only a little bit of weeping,me not being used to nursing as such managed quite well on dressing it.
Stairs are a big problem he went up with me in front and my much larger son directly behind him.He is managing to potter about but does run out of steam easily and at present is fast asleep on the settee.
We are still concerned about the damage to his kidneys and will have to go
for blood tests twice a week as his cretanin( ? not sure on spelling) levels are too high-normally 90 at 149 last blood test.
It all seems gobbledegook to me but I know it needs to be watched.
0 likes, 7 replies
Tessa
Posted
What good news. I am so pleased he is home at last. You will feel a bit nervous and keep watching him for a few weeks, but as long as he doesn't overdo it things should settle into a routine. Well done on changing the dressing. Not easy when it is the first time. Does he have to climb the stairs because he needs a little exercise. If they are too much you might consider getting in a stair lift.
It's nice to hear good news.
Tessa
Guest
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Just a quicky about creatinine. 146 is not too bad, your creatinine needs to be about 700 before you need dyalisis. I've had a kidney transplant and mine runs at 200 at the moment.My kidnays just died when I had legionaires so I know all about levels. Everyones creatinine levels increase with age and even if it stayed at this level he would be fine. If it starts creeping up then it will have to be looked at but there are loads of things they can do. diet changes are the first thing, I guess the doctors will have talked about all that though.
Good luck
Guest
Posted
My father was admitted to hospital on Friday 28 September and then diagnosed with Legionnaires on Monday when he was moved to the ITU. That night he was put into an induced coma and has been asleep since. At present his oxygen is around 80%, saturation is between 93-96%. Having researched this disease extensively on the web since Monday I’m no wiser as to how one actually reacts and recovers. I am particularly worried as he has type 2 diabetes. Does anyone know what complications this may cause?
We think he may have contracted the disease in Poland from where he and I returned from on the 17th September. Since my father was diagnosed I have had to be tested and am awaiting results. I feel fine but I did have severe diarrhoea last week, but that could be from anything I suppose.
Naturally I'm exceptionally worried about my dad and have spent a lot of time with him but am now having to return to work. Finally it's good to find others who have been through this. If I may I’d like to keep you informed and be kept informed of how your husband is during his recovery.
Thanks,
Jonathan F
Dougal
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Guest
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It's good news that your husband is preparing to return to the gym, hopefully this will not only encourage you but him an awful lot too!
The news on dad today, after a further x-ray, was it's not got any worse yet not got any better. I guess after these few days this is the best we can hope for. We were also told today that with a bit of luck they will begin to wake him up maybe Monday or Tuesday although his oxygen was still at 80% today. With regard to his diabetes they have stabilised his blood sugars to 5.6 (they were 18), this was good news.
I've spoken to my family today and they all send their best to you and your family. We have a silly family motto that is \"we'll be laughing about this next year\" - hopefully we will be. Please keep me informed and again, if I may, I'd like to keep you informed of Dads progress, it's just so good to talk to someone who has been there.
Thanks again.
Jonathan
Dougal
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Guest
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