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Legs, glutes and hips "seizing up"

Posted , 14 users are following.

rocketman42
rocketman42

I posted this in another thread but don't want to hijack that thread so I'm starting a new discussion.

I find that much of my leg and hip "pain" is under control while on 11mg of Prednisone but I have another issue. When walking I find that my legs, glutes and hip girdle feel very weak as if they are going to "seize up" and stop functioning. I find myself having to walk rather slowly since I am just not able to move them quickly......not because of pain, but because they are just not functioning properly.......I imagine it feels similar to someone who had just run 20 miles.

Same goes for my shoulders. If I'm lying flat in bed holding up a book to read, I find that I can't hold my arms raised for too long before my arms and shoulderd tire to the point of having to lower them. 

Anybody else experiencing this ?

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  • fran2498
    fran2498 rocketman42

    Posted

    Hi Scott, I felt exactly the same as you on walking when I reduced from 15 to 12mg Prednisolone although I didn't have the weakness in my arms that you describe, extreme fatigue was also a problem. However this gradually got better and now at 10mg I would say that I hardly feel any weakness when walking and the fatigue is not as bad as it was although I do still tire more quickly than I did before PMR . I hope this is of some consolation to you, however we are all different but I sincerely hope you feel some improvement soon.

  • FlipDover_Aust
    FlipDover_Aust rocketman42

    Posted

    YES!!!

    And when they 'seize up, it is quite painful in itself - different to PMR 'pain'. I simply have to stop and wait for them to recover, which usually takes a minute or two.

    I can walk for hours if I go slow enough and have something to lean on - a shopping trolly or pram. I have often wondered about getting a walker - but I'm only 52 and my pride just won't let me!

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