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I posted 4-5 months ago when I had my first severly painful bout of TN.
For me it was actually the third "attack" that was so bad that I needed to see my Dr. Before that I had 2 seperate episodes of discomfort that was like an achy tooth/jaw (left side) that lasted for 2-3 weeks.
When it finally hit me hard, I was devestated for about a month. I was given 200 mg Carbamazepine twice a day. By then I had had real pain for a couple of weeks. When I started the drug, I must have been "coming out" of that bout. After a couple of weeks on the drug, I weaned myself off.
Since that time, I have been experiencing some symptoms and I am curious about whether these things are common. First, my pain wasn't the classic sudden shock that many describe, rather it was what I imagined it would feel like to have a dentist doing a root canal without novacane. Triggered usually by eating, but sometimes out of nowhere, the pain would start in my left jaw and rediate up to my left temple. It would last 10-20 minutes, and was unbearable. This would happen about 10 times a day.
As I mentioned, I have been in remission for a while now, however there a some reminders that keep popping up. I was curious to find out it others experience these, and if it is a signal that another full blown episode is near.
First, one that is a constant is a strange feeling on my upper gum near the roof of my mouth. It is not painful by itself, but if I push my tongue against this spot above my second top molar there is a slightly painful sensation that is like the feeling you get when ( I think most kids try this!) you touch a 9 volt battery to your tongue. This feeling is 24/7 for me.
The other (and bigger ) concern is that lately, I have been getting these little reminders on my left side that are really just uncomfortable moments, without actually becoming painful. this happens throughout the day lately.It makes me think that the TN is trying to "push through" and attempt to kill me again.
The other question I would ask is for those that have periods of remission, how long do these breaks typally last for you, and do you get a clear signal that the TN is coming back?
I'm sorry for being so long winded, it is just that there is so much to say, and it's hard to easily explain.
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