Lets try to help the medical community with our disease.

Posted , 4 users are following.

After a recent flare I got reminded of how awful hydradenitis is and I've created an excel file specifically for me which contains basic variables

(date,

affected area,

pain 1-10,

if I did something out of the ordinary,

temperature outside (hot/cold),

any possible leakage and

size of the cyst/node)

After catching up on this forum I also started a diary of what I eat every day in order to find out if anything causes my flares.

I encourage you all to do the same if you want and if you can and you can get results in a year or so by comparing the food diary and the date of the flares. 

1 like, 3 replies

3 Replies

  • Posted

    Sounds like an excellent idea. For the diet aspect an elimination diet would possiacreate faster results.

    Eliminate a food group as a whole and gradually reintroduce a new food 1 week at a time.

    Eg. Nightshade group (tomatoes, potatoes, peppers, eggplant...)

    Dairy group (Milk, cheese, yogurt, sour cream...)

  • Posted

    Excellent idea!

    I've recently started eating some foods I shouldn't and have noticed some flare ups. Again, I'm not sure there is any correlation but who knows.

    I don't really buy into the food elimination belief (in my situation) too much since I had weight loss surgery about 9 months ago and was really limited on foods and my HS never subsided. I fact it grew worse.

    But, we all gotta do what we can. Keep the messages coming. Great to hear from you all.

    • Posted

      In all honesty it doesn't seem to do anything for me either...

      All the power to those it does work for 😊

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