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i've finally got round to reading the letters in the daily mail as posted on the ME association. :roll:
something that really stood out for me was the almost universal belief that chronic fatigue syndrome was NOT the same thing as ME, and was actually less severe :? :x
coming from both sufferers and non sufferers, i found this yet another disheartening example of a) how little is still known about our peculiar illness b) that there is real confusion between fatigue, and chronic fatigue syndrome and c) the ammount of confusion and prejudice it engenders.
as someone diagnosed recently with CFS - which specialists say is just a new or different way of saying ME - i would be furious if someone told me i had a less severe form of ME! :evil:
also, the woman i saw at the clinic used the terms interchangeably and usually said CFS/ME, which im actually more comfortable with. (although i usually use ME now as people are more aware of this). she also said they'd probably have to find a different term than CFS at some point as that didn't really cover it (which i agree with).
why is it that with most illnesses people just accept you've got something horrible and the focus is on how to make things better, while with CFS/ME so many people are still anxious to prove it doesn't even exist and we're just a bunch of layabouts? it seems very cruel to me
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