1. Community
  2. Blood & Immune System
  3. Haemochromatosis

Levels

Posted , 5 users are following.

philx
philx

Good morning all

Just a message to anyone just starting venesections, please don't

Be disheartened if your levels fluctuate after each venesection, mike

Made me aware this would happen, and it has in my case I started out

Around a 100 for 2 then went down to 3 at 45 this week's only dropped

By 10 ,my philosophy it will take as long as it takes.

Cheers philx

1 like, 7 replies

7 Replies

  • mike80628
    mike80628 philx

    Posted

    Hi...yeah, it's funny how it fluctuates. Still, you'll get there in the end. Nice when it drops by a few hundred from time to time. Keep going....Mike.

  • irene50060
    irene50060 philx

    Posted

    Hi Phil I cannot reply on my PC as the key pad keeps going off the screen!!! That is why I am a woman of few words LOL.....just tried using my phone but I find it more awkward.

    • philx
      philx irene50060

      Posted

      Hi Irene

      Hope you are back with us soon,

      I'm having some problems with

      My tablet it occasionally inserts a.( c or v )have no idea why????

      perhaps it's low on iron???

      Cheers philx

    • irene50060
      irene50060 philx

      Posted

      Hi Phil, or running possibly high so affecting it,s memory. Still cannot get the key pad up on PC soon as I do boots me off done a reboot still no joy get my son to look at it, still so tired and sleeping my life away!!! How are you doing spoke with a chap at the society and he asked if I wanted to go to one of there meetings!!! Do they all take camp beds I wonder?
  • zach76568
    zach76568 philx

    Posted

    Yep, at the beginning it will not drop a lot because your body is rushing to refill iron.  Honestly, I go in every 4-5 months to the vampires and I never know what my numbers going to be.  My doctor has my number around 50. He will only suck my blood if number is 50 or above.  If it goes below 50 I feel very tired and worn out.  So 50 is my happy place
  • DawnFlare
    DawnFlare philx

    Posted

    What is the 100. Is that a ferritin level?
  • DawnFlare
    DawnFlare philx

    Posted

    Thanks for the information, I am going to donate blood as soon as my last blood-draw bruise heals. It will be my first time. (I still need get used to using the medical terms for giving blood, haha.)
Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.