Levothyroxine just doesnt seem to be working!
Posted , 5 users are following.
Hi, I have had thyroid problems for over 10 years and have had various symptoms over time hairl loss, extreme weight gain, loss libido etc but since i got pregnant 21 months ago my problems have got worse to the point were I have had enough!
I am currently taking 225 mcg of levothyroxine which is a high dose but it just doesnt seem to be working? I am extremely tired still and have numerous ailments due to the condition such as , lethargy bouts of depression, muscular pains and my joints have started to weaken in my knees causing me to fall!
I am only 27 yrs old and feel as though I am a pensioner. I really have had enough of it.
Has anyone any advice? I have regular tests and everytime they show I am still undermedicated! How much can you take? what is the next step? I just want to feel normal again as it affecting my work and home life.
I had to have my tonsils removed last month as due to them been enlarged and me also having a goiter it was restricting my airways! Anyone else suffering or suffered like this? I am at my witts end x
Angie (very fed up)
0 likes, 11 replies
Guest
Posted
angii08
Posted
Its funny isnt it I feel as though when I visit my Gp Im wasting his time! as like you say the presume its in our heads however one gp at my surgery is very good he has run all kinds of tests for me oh well maybe their will come a miracle cure x
Register I only did so yesterday already worth it x
Angie x
Guest
Posted
I really do understand how you feel, reading your post is similar to my own symptoms - I'm 37 and I also feel so old, and I sympathesize with you more cos you're only 27.
A visit to my endocrinologist last week left me in tears because according to them my symptoms are 'psychological' and they believe I have chronic fatigue syndrome. I take Vit D for my muscle and joint pain given to me by my GP and my endo believes I shouldn't be on Vit D because I fall within the reference range. I'm the patient so where does that leave me?
I think you should go back to your GP and let him/her know what is going on with you. I'm going to go and see Dr. Skinner in Birmingham and if things work for me then thats good, if not, then I'll just have to get on.
Anyway, take care and I hope things work out for you.
Val_from_Coventry
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Guest
Posted
I just saw Dr Skinner this morning for the first time. I didn't have to say much, he knew it all. I am also starting the T3 alongside the T4 and will be carefully monitored. He was very reassuring and was very taken back when he saw how low my ferritin levels were. Unlike my GP and endocrinologist, Dr Skinner explained everything which was clearly understandable. I've had so many problems since I've been taking thyroxine and he believes its because I've been hypothyroid for such a long time and my body has to adjust to it to the whole change that is taking place.
I can only wait for a while and see what will happen next. But for now, I'm feeling that someone professional understands what is really going on - and thats important.
Take care all
angii08
Posted
will they remove my goitre and thyroid?
Im just really unsure bout it as even though ive had the problem for quite a few years Im still non the wiser at even gp's dont seem to know much x
Angie x
Val_from_Coventry
Posted
Also to [color=red:8d9919e78b]MS1Guest [/color:8d9919e78b]- absolutely fantastic - it may take a little time for you to feel the effects but stick with it. Please let me know how you get on too.
Best wishes to both of you, ValfromCoventry
alicia
Posted
I now go to an endocrine clinic at an NHS hospital 25 miles from where I live (in Nuneaton) where they monitor my T3/T4 levels closely.
It makes me so angry that people are still have ing to pay out for what is theirs by right on the NHS - good health.
Val_from_Coventry
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Guest
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I agree with you - we're having to pay out which is rightly ours on the NHS. My endo just left me to it and I was just left hanging. I only went to Dr Skinner as the last resort because I couldn't cope anymore. Everything he explained to me should've been done by the endo. He was great, and he didn't look at me as if I was a psycho nutcase!!! I'll let you all know how I get on, it's still early days but I'm having hope. He believes I've been hypothyroid for a very long time.
Angie, if things are that bad I think you should consider going to Dr Skinner. Read about him on ThyroidUk. All you need is a referral from your GP or other Medical Professional.
Good luck, we are all here for each other.
ms1
alicia
Posted
The NHS is very limited in what is on offer.