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LICHEN PLANUS

Posted , 8 users are following.

jerri28090
jerri28090

can someone help me ive been diagnosed with lichen planus its on the soles of my feet my legs back and wrists its now on my vulva area the steroid creams arent working and the doc said id need abiopsy im getting blisters on both my vulva and bottoms of my feet it feels like im walking on glass the pain is terrible and nothing seems to be getting done about it is there anything i can use apart from diprobase and steroids as it doesnt seem to be working and im at my witts end !!

1 like, 8 replies

8 Replies

  • Nanny_mo
    Nanny_mo jerri28090

    Posted

    I hope you're seeing a consultant dermatologist and not just your GP. Steroids seem to be the best and only treatment .mabybe a different one would helpl.
    • davec1001
      davec1001 Nanny_mo

      Posted

      Try vitamin d.  Safe and might help. It did for me. 
    • jerri28090
      jerri28090 Nanny_mo

      Posted

      well ive just been diagnosed by a doc/skin specialist he said to go back and see him if it got worse and to use steroid creams for 8 weeks i cant get an appointment with him for three weeks so im making an appointment to see a gp tomorrow as im so low im crying constantly as the pain is terrible it also looks terrible people are staring at my hands and arms as if its contagious the steroid cream made it worse i think taking vitamin d thats not helping i feel so lost 
  • Nanny_mo
    Nanny_mo jerri28090

    Posted

    Sounds awful. Hope your GP gets you an earlier  appointment with the specialist. Some creams are better than others . Lichen planus can clear up by itself so don't despair. Look at some of the cases of this website.
  • carol00748
    carol00748 jerri28090

    Posted

    So sorry you are having such a bad time. It seems to me everyones experiences of LP/OLP are different so it is difficult to compare what works for one person with what works for someone else. As said elsewhere on the forum, avoiding soaps and irritants seems to be improtant for everyone and steroids either by cream or tablets or injection aims to reduce the inflammation. My mouth gets sore but I haven't experienced much in the way of pain from my skin LP except from one small area at the beginning. I thought then that the area may have become infected as pain can be a symptom of skin infections, I would recommend getting your doctor  to check for that. The other thing I would suggest is talk to your GP about pain control as I really think that needs to happen and no one should be left crying in pain. 

    I do hope this settles for you. 

    Good luck.

  • paul78987
    paul78987 jerri28090

    Posted

    I feel your pain, its frustrating as Doctors seem to clueless. I've had it for years, steriod cream didn't work for me either.  I worked out that Antihistamines, like benadryl anti allergy capsules were the only thing that stopped the itchiness.  And a week in the sun clears mine up, or sunbeds.  I going to give vitamin D tablets a go as well, because I'm convinced its something to do with not enough vitamin D.  Hope this helps.
  • karen41728
    karen41728 jerri28090

    Posted

    Hi jeri do you know what's caused this only I have lichen planus and I'm sure it's linked with hpv virus which causes abnormal cells in smear test cx
  • tracy77058
    tracy77058 jerri28090

    Posted

    Try mediical grade manuka honey ,stings for a few seconds but is the only treatment that has helped me ,I suffered terrible for 4 years ,after 3 days the soreness improved and the redness and swelling went
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