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lichen planus

Posted , 15 users are following.

pat33328
pat33328

OH thank god for finding this site and some others with the same complaint.

I have got lichen planus on arms very bad, legs, vulva, oraland now starting on my chest. I have used cetroban, dermovate, dermol, doublebase cream, hydrocortisone, calamine lotion, aqueous cream..my GP been excellent.

Also Trimalgin, betnovate for below and am now tearing my hair out with sleepless nights with itching.

I go to work like a zombie and its so embarrasing having to scratch, they say the monkeys here as a joke.

Please can anyone help me, this has gone on for 6months nearly...am waiting to see the dermatologist. I had a vulval flare 4 years ago and was ok up until early this year....Thanks

0 likes, 33 replies

33 Replies

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  • tomsbestfriend
    tomsbestfriend pat33328

    Posted

    Hello Pat

    I am so sorry to hear of the severity of your skin conditions. Why not join some of us here on the two - three day fast and see if that helps to re-set your immune system so that it stops thinking your own body is a problem. This is something that is in the very early stages of research in USA, but it doesn't do us any harm to stay on water, black tea/coffee for that time and it may do us some good. I did a two day fast at the beginning of August and am trying a three day fast this September. I found that I felt pretty energised and not at all hungry. I reckon it was the fear of no food which was the problem for me in getting started.

    There's a group of us here who are starting the fast tomorrow.

    Join us???

    • pat33328
      pat33328 tomsbestfriend

      Posted

      I would love to do it but dont think with Diabetes it is a good idea.

      Thank You for your support.

      I would love to hear how you all get on though.

  • Jeepers
    Jeepers pat33328

    Posted

    Hi Pat. This sounds like  LP or LS in the vulval area and if so it is diabolical. You have my every sympathy. The treatment is dermovate, the clobetasol 0.05, whichever of these diseases you have.

    It has to be used very sparingly but it usually the only thing that brings real relief. Scratching and rubbing can damage the skin further,  so you need to get this under control.

    I hope you see your dermatologist very soon, but if not, you should go back to your GP and tell her/him how bad it is. Mostly it seems docs start us off on the milder medications , then wait till we scream before giving us something stronger.

    I had LP for over two years in various parts of my body then it went to the vulval area. It is either LP or LS which I have, and I have never had a biopsy done as the treatment is the same anyway.

    Act soon and don't scratch if you can help it. I  know it is well nigh impossible not to at times!

     

    • pat33328
      pat33328 Jeepers

      Posted

      I had to lock the door at work today and scratch below for England, it was awful...Thank You for replying any new ideas i will try but have to watch with my Diabetes.

      Dermovate i have heard works wonder and you have said the same( why she did not give me that.)? 

      I will have a word with her if i dont get Dermatology apt soon

      .Thanks Again

    • karen41728
      karen41728 pat33328

      Posted

      Hi pat just wondered how you are I am the same I noticed I started with mine after an abnormal smear test years ago for which I had treatment, have you ever had problem with smear test x
    • karen41728
      karen41728 Jeepers

      Posted

      Hi Jodie I suffer badly with this mine came after an abnormal smear for which I had a biopsy and some treatment have you ever had any problems like this I just think there linked x
    • jane51352
      jane51352 pat33328

      Posted

      Hi Pat. I have only just joined this site, and find it interesting and I hope helpful.  I am having my second bout of LP, and I have had it for over a year. The dr put me onto dermovate, but I know how awful that is to long tern use.  I have refused all other medicinal offers. I have been using Tea Tee blemish stick to stop the itching on new lesions, and the moisturiser which helps to stop the new lesions getting bigger, and sometimes gets rid of them. I have LP all over my body, but it has left my hair at the moment. I have a bad lesion on my leg about 3 x 2 inches, which will not get better. I have tried aloe vera gel and Papaya skin, with no change.  I am on a sugar free diet (not that one can be free of it)  but that hasn't had any effect yet. I hope that someone out there has a few more suggestions. Mine did not follow a smear test. I was very run down due to several reasons.
    • karen41728
      karen41728 jane51352

      Posted

      Hi jane

      How old are you why did you have hysterectomy I don't think vulva specialist necessary has LP is everywhere on skin it just needs watching also I have hpv and some creams activate ut

    • rajkiwi
      rajkiwi jane51352

      Posted

      Jane & Pat I was reading through the various replies and thought of adding my remarks at the end. However I felt Jane might miss out on it. Pat works like a Zombie, You were run down, I was going through a bitter break up...there is a pattern of "Stress". I never believed the doctor when she told me this could be a trigger. 

      I am on a less sugar diet plus I avoid processed foods as much as possible. There is one more suggestion which I have not been able to make part of my life and that is relaxing breathing yoga exercises. Not Vinyasa etc which is for extreme health freaks. 

      This may eventually help keep LP-LS at bay or atleast help us consume the least medication

  • renee77108
    renee77108 pat33328

    Posted

    I have just ended a 5 day fast.  You have lots of water, and can have up to 200 calories a day in a vegetable juice or a citrus (which bothers some...but I diluted mine alot) and all the non-caffeine herbal tea you want. I have already notice that my mouth has healed and the itching in the private area and my legs is much improved. I also recently found that a dab of 99% pure aloe vera gel in the private area all but eliminates itching. It did not help as much on my legs though...but may for others.  The fast was not as difficult as I expected...you just need to be careful coming off it...I started with a finely chopped salad of lettuce and carrots and then a yogurt and good probiotic. By the next day I was eating fairly normal...just be careful about dairy or hard to digest meats for a few days...add them back in slowly.
    • karen41728
      karen41728 renee77108

      Posted

      Renee did you say you had abnormal smear and any treatment or has anyone else got hpv
    • renee77108
      renee77108 karen41728

      Posted

      I've had both.  Lucky me...sad  NOT!  Fortunately I've not had a reocurrence of either.
    • renee77108
      renee77108 karen41728

      Posted

      They did an ultra sound afterwards and detected excess endometrial tissue and told me that I probably had uterine cancer. I did a health cleanse and cleaned up my diet...did a bunch of holistic things. 6 weeks later when they did the biopsy they said all the excess tissue was gone and that the biopsy would likely come back negative...10 days later I got the good news.  No problems since and that was about 7 years ago.
    • karen41728
      karen41728 renee77108

      Posted

      That's good news renee I had cone biopsy for abnormal cells but smears have been clear since just this lichen planus which I struggle with
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