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lichen planus and me

Posted , 3 users are following.

Guest
Guest

I've been suffering from lichen planus for a few months and am quite frustrated with the way i've been treated.

i went to see my gp 4 times and had several diagnosis' which were made without any form of biopsy/testing. i was told i had eczema, dermatitis, erythema multiforme, psoriasis, and god knows what else.

by this time i was thinking that i could have Anything but was being fobbed off for a hyperchondriac. i then DEMANDED to see a dermatologist privately because the NHS waiting list was ridiculus.

when i eventually got an appointment my diagnosis was immediate. treatment wass recommended and i thought this would be at least a start to my healing process. i was given a course of 40mg prednisolone and told to take this daily for 14 days. i had to stop treatment myself on day 13, as i was passing out at work, my blood pressure sky-rocketed and i felt very unwell. i tried to talk to my gp at request of a personal friend who happened to be a nurse. my gp would not give me any advice.

since stopping treatment my skin has become a lot worse and from gathering information from various websites i have discovered the extent of people who recommend not taking steroids and also the relationship between LP and other illnesses.

0 likes, 3 replies

3 Replies

  • donkeyjindi
    donkeyjindi

    Posted

    Hi - also diagnosed with LP, also had a course of Prednisolone from my GP as my skin was very inflamed, it did nothing I could determine, and immediately on stopping (I was on 10mg twice a day) I had a flare up. It is continuing to spread, now on back, sides, stomach, arms, legs and feet - scalp too for which I have Betnovate - this is over 3 months, during which time I've seen my GP twice and a dermatologist twice, biopsies done for confirmation. Allopathic medicine seems only to be able to offer steroid treatment and I have used some cream and might still do so to some extent, now have new prescription of Nerisone, tried Dermavate, not impressed, but I won't take heavier dose of steroids orally unless last resort as side effects can be worse than the original illness (a bit like the cause of this LP which is probably anti-malarials I took in December/January). Anyway, I'm going to see a homeopath, so will post info as I get it.
  • No_nails
    No_nails

    Posted

    PleaSe let us know how it went with homeopath and any recommendations
  • donkeyjindi
    donkeyjindi

    Posted

    Hi - have just written an enormously long reply which now seems to be lost. Have contacted the site but am waiting to see what they say before tackling it all over again. It was a problem with signing in and a new password which I did, was signed in, but when I hit the post reply button, it kicked me back to signing in. Very briefly for the minute because I know how anxious-making it is waiting for some help, I did many things, including homeopathy, had EFT, took supplements, ate organically, basically addressed the fact that clearly my body was under overwhelming stress. Since learnt that this is the body's way of diverting damage away from the essential organs which is a good thing! Mine went in 6 months and the dermatologist said I had done it myself. After a brief trial of the steroids, I gave it up and didn't use either cream and certainly not tablets again. I get little flurries which are nothing really and last no time and usually in January/February (anniversary of getting it in the first place) and the fact that it's winter is probably significant. Vit D3 is vital for health in general and the right kind of sun is best.
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