1. Community
  2. Skin and nails
  3. Lichen Planus

Lichen Planus treatment

Posted , 4 users are following.

janice3412
janice3412

I need to know what drugs that anyone with systemic LP, oral, esohogeal, opthalamic and vaginal has been treated with that has helped.  I am on FMP eye ointment at night and lotemax drops at night and have had jones tubes put in my eyes to drain the tears. For the esophagus I took  nystatin tabs for a week with some improvement and for the vaginal tx i use anusol HC suppositories vaginally 3-4 times weekly.  They started me on steriod shots x 2 months then switched me to Cyclosporine 100mg tabs 2 x daily but had to stop since it elevated my BP.  Just wondering what kind of treatments others have had luck with. Thanks

0 likes, 7 replies

7 Replies

  • karen41728
    karen41728 janice3412

    Posted

    Hi Janice. How long have you had lichen planus I have had it for 13 years but just recently it's bothering me my arms are covered in a rash which my doctor only gave me e45 which does nothing  he won't actually say it's LP but I have it orally so I know it's on my body do you know what caused yours Janice ?  I had an abnormal smear test when I started with this and I think it's all linked.
    • janice3412
      janice3412 karen41728

      Posted

      I have had LP for 2.5 years but my is internal,  no rashes on body. I have oral flare ups approx. every 2months.  Get frequent dental cleaning and this will help. Wish you well.
    • karen41728
      karen41728 janice3412

      Posted

      Hi Janice how are you? Hope your okay have you ever had treatment for an abnormal smear test?cx
  • pauline07984
    pauline07984 janice3412

    Posted

    Hi Janice  I am quite new to LP, having had my oral LP confirmed only last month. At the moment I am not on any medication for it, although I have been given Difflam mouth wash to use if I need it. I understand that usually steroids are used either in a cream for skin or mouthwash for OLP. I think its seems to be a case of seeing what inflames the LP and avoiding certain foods. I can't drink anything too hot and try to avoid sharp, scratchy foods. I think I may also have had a bout of vulval LP, although the consultant didnt confirm this. I had Fucibet cream which seems to have helped. It sounds like you have it quite widespread. I hope you manage to find something that works well for you. Its very interesitng that we all seem to be in our 50's (i'm 51 this year) i wonder if this has something to do with hormone levels etc.  Good luck with finding a succesful treatment. Pauline 
    • karen41728
      karen41728 pauline07984

      Posted

      Hi Pauline have you ever had abnormal smear test I do think there linked xx
    • pauline07984
      pauline07984 karen41728

      Posted

      Hi Karen, no my smears have been ok. I think it may be linked to hormone changes as most sufferers seem to be women in their 40's and 50's. Just one more thing we have to cope with! Hopefully one day they will discover what the cause is and develope a cure x
  • Guest
    Guest janice3412

    Posted

    Hi Janice,

    For esophageal I have taken Cellcept, Methotrexate, a Budesonide (and Splenda) slurry and finally a 4 week course of I.V. Rituximab. The Rituximab has been the most successful and had the least amount of side effects. For oral I have taken Lidex, magic mouthwash and nystatin.

    I hope this helps.

    Kind regards,

    Mary.

    Mary.

Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.