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Lichen Planus ( Vulva Vagina Gingaval Syndrome)

Posted , 3 users are following.

nicola_66716
nicola_66716

Has anyone ever had Pysiotherapy?

0 likes, 3 replies

3 Replies

  • linda32054
    linda32054 nicola_66716

    Posted

    Oh, I thought you meant what is Pysiotherapy. You mean having pysiotherapy for Lichen Planus (Vulva Vagina Gingaval Syndrom).? Glad you actually spelled that out because I suffer from the same thing plus OLP. Not a fun ride is it?

     

    • nicola_66716
      nicola_66716 linda32054

      Posted

      I also suffer from OLP to it is not fun I am on my 4th Autoimmune drug :-( . Hope you don't mind me asking but how are you getting on with lichen planus? . X

    • linda32054
      linda32054 nicola_66716

      Posted

      I am currently on Cellcept. Its the same as mycophenolate mofetil. It certainly works great on my OLP, but the side effects are awful. Rapid weight gain, headaches and my hair is fallling out, because it is sort of a cancer drug or a drug for people who have had a transplant - it used so their body doesn't reject the transplant. I am fortunate that i can at least eat what I want for now anyway. My niece has suggested I try other drugs, for OLP, but none of the oral meds work very well.

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