Lichen Schlerosis is unbearable
Posted , 5 users are following.
I was diagnosed with Lichen Schlerosis in 1991. I was only 42. My doctor at the time was an expert on it. He is the one that came up with the testoserone ointment. He formulated it. I've been using it since 91. I worked well for a few years. About 10 years ago it started getting worse. Now the itching is UNBEARABLE to say the least. When it isn't itching I have the worst UNBEARABLE again, PAIN. I don't know which is worse. I wouldn't wish this on anybody. I was told by my doctor back then that it's a dermatology condition. I have tried EVERTHING possible to help. Including Emulaid. Nothing works. Nothing. My husband are on our way to a divorce now because I can't be intimate with him. But Borax? Ooooh no don't think so.
0 likes, 3 replies
sarb73328 snazzybabs
Posted
I feel for you, snazzybabs. I am new to this disease and this forum and am still learning about LS. Because my doctor has still not given me clob (I don't really know why and am about to ask her at my next appt) and I have fusing I have started with borax treatment as I think it's worth a try. I have been applying it night and morning for a couple of months and using coconut oil to moisturize and emollient to wash. I find the borax soothing but have no signs of unfusing yet. Why do you not want to use it?
Also, so little is made of the psychological affects in my opinion. Alongside the physical discomfort, our body image is seriously damaged by this disfigurement and that takes it's toll on our sexual relationships. It makes me feel undesirable and that has an impact on my husband. We all need really understanding partners.
Bridge_of_Sighs snazzybabs
Posted
I use Borax too, the itching stopped instantly. I noticed a lot of change immediately, then it all slowed down. Now 18 months later there are seams where there used to be smooth skin and I hardly use the steroid. My attitude is that if I am going to go off piste I want to have regular doctor checkups. My doctor is recommending it to her other patients because she's been so impressed with the change she has seen in me.
It's like salt, you can poison yourself with too much salt, but a pinch makes everything better. Read the thread and make sure you use the right amount.
Here's another way of looking at it; my husband is on warfarin. Warfarin is rat poison, but it also keeps him alive. things have multiple applications.
I hope that helps, I'm sorry you're in pain, this is a horrible condition and so much more research is needed. Borax helped me, please don't be afraid of it.
Bridge_of_Sighs
Posted
That wasn't very clear, sorry. The seams are where things are very slowly starting to unfuse. I thought bits of me had gone, but now they're starting to appear again.