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I've been reading through this forum for a few weeks and have found it a huge source of comfort knowing that I am not alone in what I have been experiencing.
I'm 47 and have been experiencing the symptoms of LS for around 7 years, roughly since my third child was born. I was given a biopsy 3 years ago and at that time my gynae told me it was possible I had LS and gave me a badly reprinted A4 photocopy with basic advice and a presecription for Dermovate, which I have used (badly I think) over the last 2-3 years. I was told at the time that I showed signs of some 'loss of architecture', but he didn't really explain what he meant by that and I worried that I'd caused this by my persistant itching. I think the small area of whiteness I have is from an episiotomy I had during childbirth. I have pain and tearing and like others I really miss the intimacy I had with my husband. He has been wonderful but our sex life is really almost non-existant (as parts of my body literally seem to disappear!).
In tandem with the itching in my genital area I itch all over. I have no signs of any rashes or spots anywhere but am taking a daily pill for Fexofenadine (antihystmine) to reduce the itching. At the same time as this itching I had a small area of excema break out on my face, and then Rosacea and/or adult acne all over my nose! Life can be very cruel.
I tried everything and eventually discovered that the only treatment which helped the skin problems on my face was antibiotics (Lymcyline). I hated being on these (2 years!) but they worked. Every time I come off the antibiotics my face flares up again. I worry that some of my symptoms might be side effects of one or other of these medications but have no evidence to prove this. In some ways the LS (if this is what I have) improved a little when I was on the antibiotics.
My skin has always been so good that I've found these changes incredibly hard to take and find it hard sometimes to stay positive.
I'd be interested to know if anyone else has experienced similar itchiness and skin problems simultaneously with the onset of LS?
I've been reading about the use of Potassium Borate on this forum and of Bicarb of Soda and am trying the latter. I've also ordered some Emuaid cream. For those based in the UK, can you let me know if you have found a source of the Potassium Borate? It sees to be banned in the UK which makes me very wary about using it. (you should have heard the chemist when I naively explained that I was looking for Borax for treatment of LS....!).
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